Call for footage for Rare Disease Day 2021 Video!

Published: Tue, 12th January 2021, 09:14:00 AM

Thank you for submitting your videos - we look forward to seeing if any of our TOF community appear in the final cut!


As part of Rare Disease Day 2021, Genetic Alliance UK are producing a video that aims to capture what it’s like living with a rare condition.

They are looking for adults to tell their story about how they manage their condition on a day-to-day basis, as well as footage that portrays the harder times that living with a rare condition can bring, such as medical procedures and appointments and medication.



If you’d like to get involved and share some clips of your life please check out their wishlist of moments that they’d like to include and see if you have any videos that might work. 

Please send your video footage to: via email, WeTransfer, Dropbox or Googledrive. Deadline for footage is Wednesday 13 January 2021.  

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