News

New UK Rare Disease Framework Published!

Published: Thu, 14th January 2021, 11:40:00 AM

The Department of Health and Social Care has published the UK Rare Diseases Framework, which replaces the  previous UK Strategy for Rare Diseases published in 2013. 

The UK Rare Diseases Framework outlines 4 high-level priorities for rare diseases in the UK over the next 5 years:

  • helping patients get a final diagnosis faster
  • increasing awareness of rare diseases among healthcare professionals
  • better coordination of care
  • improving access to specialist care, treatments and drugs

The new framework will go a great way to insuring that the lives of people living with rare diseases continue to improve.

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