Help needed to improve training and support for parents new to gastrostomy care

Published: Thu, 25th March 2021, 01:40:00 PM

In 2020 TOFS helped to recruit families of children who are gastrostomy fed to work with Bethan Page (Research Fellow, Experimental Psychology, University of Oxford) in order to try and improve training and support for parents new to gastrostomy care.  We’d like to extend our thanks to all who took part in this stage of the research.

A set of videos are now available for parents on caring for their child's gastrostomy, view them here. The videos have been produced in collaboration between families, the surgical team at the John Radcliffe hospital in Oxford, Helen & Douglas House children’s hospice, and various nurses from the community.

The researchers would now love to get feedback on these videos from families of children who have recently had gastrostomy surgery.

If you’d like to help, you can access the survey here. The survey asks families to watch six of the videos, rate the content of the videos and answer a few questions on how the videos can best be used in practice. All participants will receive a £10 Amazon voucher as a thank you.

Research fellow, Bethan Page says: ‘we are seeing a real impact with families in Oxford, helping them to feel more confident in the first few weeks at home after surgery. The videos are also proving helpful to some experienced parents as a refresher and to provide information that might have been missing from their training.’

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