News

Take part in the Children’s Surgery Outcome Reporting project

Published: Mon, 25th October 2021, 09:40:00 AM

Would you like to take part in a research project looking at the long-term experiences after children’s surgery?

The Children’s Surgery Outcome Reporting (CSOR) research project aims to build a database to collect information on children’s surgery outcomes.

Across the UK, there is significant variation in the way children are treated for surgical conditions (conditions that usually, but not always, require an operation). However, we do not know which aspects of these variations affect how successfully children are treated. Producing evidence requires collecting reliable information about how children are currently treated, and linking this information to information about their long-term health and wellbeing.

The CSOR programme aims to do just this – by developing a system that links data collected in the process of clinical care to parent-reported outcome data, and Hospital Episodes Statistics (HES) data.

Please help CSOR design the parent-reporting component of the database by participating in a focus group and an optional short follow-up survey.

They are looking for parents, guardians, or carers of children who have been diagnosed before the age of 16 with one of the following conditions (regardless of whether the child has had an operation):

  • Oesophageal atresia
  • Necrotising enterocolitis (NEC)
  • Hirschsprung’s disease
  • Abdominal wall defects (gastroschisis, exomphalos)
  • Congenital diaphragmatic hernia (CDH)
  • Posterior urethral valves (PUV)


You must be over 18 years old to participate. Participants will be offered £20 shopping vouchers.

For more information, please visit, https://www.thiscovery.org/project/childrens-surgery-outcome-reporting/ or email csor@thisinstitute.cam.ac.uk

CSOR Study

© Tracheo-Oesophageal Fistula Support
TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
Website by Altido

Our team at TOFS is working tirelessly to bring you the latest advice regarding Coronavirus. The support and advice we provide are only possible thanks to kind donations from people like you. If you're able, please consider donating now.