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TOFS Awareness Week 2024

Latest News

TOFS Summer Superhero Spectacular

TOFS Superheroes assemble!

Last Saturday saw our OA/TOF Superheroes assemble for the TOFS Summer Party. Our heroes enjoyed a great afternoon filled with fun and games while some their sidekicks (or parents) got

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CARE study

CARE genetic study update

Join Columbia University Irving Medical Center this Sunday (5pm UK) for a progress update on the CARE EA/TEF Study which many members of TOFS participated in. The study which examines

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TOFS fundraiser cheque

TOFS receives an amazing donation

TOFS Members Rebecca and Joe Crossley were recently presented with a cheque for £2500 from their local butcher, Michael Fuller. Rebecca said, “Every year my mother-in-law, Julie, makes homemade Christmas

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Upcoming Events

Our next few events are shown below. Please click here to view all our upcoming events.

Can You Support Our Work?

TOFS receives no Government support and relies completely on donations from our supporters.

Regular donations are extremely important to TOFS. By choosing to give a regular monthly donation, you will help us to plan ahead and make long-term improvements for people with OA/TOF and associated conditions all over the world.

Monthly

£6.00

RECURRING
Monthly

£20.00

RECURRING