• ESPGHAN recommends regular monitoring to check for reflux in patients with TOF/OA

    Published: Tue, 27th November 2018, 09:00 AM In the Spring 2017 edition of our newsletter, Chew, we published a summary of the guidelines that had been issued by ESPGHAN in late 2016, regarding the evaluation and treatment of gastrointestinal and nutritional compli ... [Read more]
  • Does your 5-12 year old child have Oesophageal Atresia? Please complete our Survey

    Published: Mon, 19th November 2018, 10:05 AM The TaPSOn study is now recruiting parents of 5-12 year-old children with OA/TOF. Dr Wallace at the University of Bath is particularly welcoming responses from fathers! There have been nearly 40 responses already. Thank you ... [Read more]
  • Meet our London Marathon 2019 Runners

    Published: Wed, 14th November 2018, 12:36 PM Lee Barnard 'I was born with TOF in 1979 at St Mary's Hospital in Greater Manchester and was operated on the day after. Since then, I've had a few health issues. I had half of my left lung removed in 1983 after choking and floo ... [Read more]
  • Patients and healthcare professionals wanted for CONCORD Focus Groups

    Published: Wed, 7th November 2018, 12:12 PM CONCORD (CoOrdiNated Care Of Rare Disease) is a research study which aims to investigate how care of people with rare diseases is coordinated in the UK and how patients, their families, and the health care professionals who c ... [Read more]
  • Three useful cards - available NOW!

    Published: Thu, 1st November 2018, 10:00 AM These useful little cards are just the thing for certain situations that many TOF/OA families and TOF Adults understand well! Request your copies from the TOFS office now, by emailing  Please include which ... [Read more]
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TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
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