News

  • Rare Disease Day, 28 February 2019

    Published: Thu, 28th February 2019, 09:00 AM Rare Disease Day 28 February 2019   We are delighted to support Rare Disease Day (28 February 2019). Thank you so much to everyone who has shared our Rare Disease Day images on social media. There is still time to ... [Read more]
  • LAST CHANCE to take part in important survey re TOF/OA and a 'lost twin'

    Published: Wed, 27th February 2019, 12:16 PM OUR SURVEY CLOSED THURSDAY 28 FEBRUARY TOFS invited parents who have had children born with TOF/OA to take part in this very short preliminary survey to better understand the possible link between these conditions and a ‘lo ... [Read more]
  • Congratulations to Harriet, an Ouch! Award Hero

    Published: Mon, 4th February 2019, 11:50 AM Congratulations to Harriet, age 10! Dr Chris and Dr Xand, from the hit children's BBC TV show Operation Ouch!, explore the ins and outs of the human body using experiments. Our member, Harriet, who didn't eat until she was n ... [Read more]
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