News
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Help us make a video for TOFS Awareness Week 2021!
Published: Tue, 22nd December 2020, 03:24 PM As part of the 2021 TOFS Awareness week we’d love to produce a new video featuring some children/teens/adults born with OA/TOF. Here’s one we hope to include, sent to us by Max Merrett, we think it’s g ... [Read more] -
Season's greetings from TOFS!
Published: Tue, 22nd December 2020, 10:13 AM What a year 2020 has been. Some of you reading this will have connected with TOFS for the very first time this year; whether by seeking information and support with your new baby, attending our online Q&A sessions, reading the ... [Read more] -
OA/TOF highlighted in the first of ERNICA's animations that aims to help patients and families affected by Inherited and Congenital Anomalies
Published: Mon, 21st December 2020, 01:12 PM TOFS are delighted to see this initiative by The European Reference Networks for rare diseases - Inherited and Congenital Anomalies (ERNICA) in developing a series of animation videos which aim to provide information to patients, ... [Read more] -
TOFS involved in another big research project!
Published: Mon, 21st December 2020, 10:04 AM In 2021, the feasibility study stage of a major UK research programme – called TOAST (Treating Oesophageal Atresia to Prevent Stricture) - will get underway. The intention is to run a “gold standard” random ... [Read more] -
TOFS trustee Graham Slater, co-authors letter to The Lancet on the impact of a no-deal Brexit on ERNs
Published: Thu, 17th December 2020, 10:56 AM European Reference Networks (ERNs) are virtual networks of specialist hospitals across Europe that address rare and complex conditions (such as OA/TOF). TOFS Trustee, Graham Slater, who is also the ... [Read more] -
Please be aware of the dangers of button batteries this Christmas!
Published: Thu, 17th December 2020, 10:00 AM Please take extra care when using button batteries as they can cause potentially life threatening injuries if swallowed. While this is dangerous to any child, the damage caused to an already compromised oesophagus could be even m ... [Read more] -
The TOFS recipe book is here! (a new shipment on their way to Amazon NOW)
Published: Thu, 3rd December 2020, 02:18 PM The book is packed to the brim full of easy and tasty dishes to cook for your family, whether they are on a purée diet or are coping with solid foods, there is something to suit everyone. Thank you if you ... [Read more] -
TOFS receives two HUGE grants!
Published: Thu, 3rd December 2020, 10:38 AM In order to continue to support the OA/TOF community we rely heavily on corporate grants as well as the dedication of our individual and corporate fundraisers. We are very grateful to have been in receipt of two huge grants this y ... [Read more] -
Wow, thank you for running for TOFS!
Published: Tue, 1st December 2020, 07:59 AM 2020 may not have been a ‘normal’ year but that hasn’t stopped our fantastic TOFS members from achieving their fundraising goals! This year the London Marathon and Great North Run have been virtual events, ... [Read more]