News

  • Your Charity Lottery - New lottery to support TOFS!

    Published: Mon, 18th January 2021, 11:10 AM Click here to play and be in with a chance to win! TOFS is delighted to have teamed up with Your Charity Lottery to give our members a chance to win one of 81 weekly prizes, whilst raising much needed funds for the charity! Wo ... [Read more]
  • TOFS Trustee Graham Slater appointed as PPV Partner to the NHS England CRG - Specialised Surgery for Children!

    Published: Thu, 14th January 2021, 01:43 PM We are pleased to announce that TOFS Trustee and Honorary Secretary Graham Slater has been appointed to the role of Patient and Public Voice (PPV) Partner on the Specialised Surgery for Children CRG Clinical Reference Group (CRG). ... [Read more]
  • New UK Rare Disease Framework Published!

    Published: Thu, 14th January 2021, 11:40 AM The Department of Health and Social Care has published the UK Rare Diseases Framework, which replaces the  previous UK Strategy for Rare Diseases published in 2013.  The UK Rare Diseases Framework outlines 4 high-level ... [Read more]
  • Coronavirus

    Published: Wed, 13th January 2021, 10:40 AM As we enter the third phase of rises in Covid-19 cases in the UK, we will continue to update this page regularly.  Advice is changing frequently so please check back often.  With the identification of a new, more rapidly ... [Read more]
  • Call for footage for Rare Disease Day 2021 Video!

    Published: Tue, 12th January 2021, 09:14 AM Thank you for submitting your videos - we look forward to seeing if any of our TOF community appear in the final cut!   As part of Rare Disease Day 2021, Genetic Alliance UK are producing a video that aims to capture w ... [Read more]
  • It’s a New Year, and we are pleased to announce we have a new recruit to the TOFS team!

    Published: Thu, 7th January 2021, 12:09 PM Interviews for the Volunteer and Events Co-ordinator role were held at the end of last year by telephone and Zoom, and member of TOFS, Sophie Parkins, was delighted to accept the position. Sophie will be responsible for helping&n ... [Read more]
  • The impact of Brexit on people travelling to Europe with pre-existing health conditions

    Published: Mon, 4th January 2021, 01:30 PM Further to our previous guidance posted in November 2020, we are pleased to advise that the recently announced ‘Brexit deal’ accommodates ongoing reciprocal arrangements for emergency healthcare for travellers with in ... [Read more]
© Tracheo-Oesophageal Fistula Support
TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
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Our team at TOFS is working tirelessly to bring you the latest advice regarding Coronavirus. The support and advice we provide are only possible thanks to kind donations from people like you. If you're able, please consider donating now.