Understandably, it can feel overwhelming if your little one has just been diagnosed with a condition such as OA and/or TOF, and the natural instinct for many is to glean as much information as possible. It’s important to know that there’s a real variation in the implications of these conditions, depending on the nature of the gap and the presence of additional complications.
We have categorised our support into a number of different sections, and suggest, especially if you’re a parent who’s new to the world of OA/TOF, that you focus on the time-frame that your child is in right now, and try not to look too far ahead.
Alternatively you may be a teen or adult who’s been born with the conditions and you may not have given them much thought until you leave paediatric care, or, until you experience gastric or respiratory issues in adulthood (as some do). Please remember also the invaluable peer support available on our Facebook groups, and within our regular magazine, Chew, which is available to all members.
We hope you find the information here easy to navigate. Please visit our ‘Videos’ section for further information and the ‘Publications & Leaflets’ to order hard copies of our resources. Please contact us if you have any additional questions, or if there’s something we haven’t covered here that’s causing you concern.