Possible link between OA/TOF and ‘lost twin’

TOFS invited parents who have had children born with TOF/OA to take part in this very short preliminary survey to better understand the possible link between these conditions and a ‘lost twin’. All mums were invited to take part, regardless of whether their TOF is still a baby, child, teenager or now a TOF Adult.

This excerpt is from from ‘The TOF Book‘ in the chapter written by Consultant Clinical Geneticist Charles Shaw-Smith:

“Data from one study showed that a child from a twin pregnancy is nearly three times more likely to have TOF/OA than a child from a singleton pregnancy… It is possible that some cases of TOF/OA occur in one twin where the co-twin was lost at an earlier stage of pregnancy and may not have been appreciated either by the mother or the doctors looking after her.”