Leaving Paediatric Care and Negotiating Adult Services
Leaving Paediatric Care and Negotiating Adult Services
Watch: Chest wall deformities Q&A
TOFS AGM
OA/TOF MDT clinic: Providing holistic care to patients and families
Meet your TLC – TOFS Local Contact
Multi-national data collection and its role in improving outcomes in OA/TOF
Tom Bright on BBC Radio London
OA/TOF: The lost twin hypothesis presentation
International developments relevant to OA
The OCELOT project: Developing a core outcome set for oesophageal atresia
The TOAST trial – Does anti-reflux medication prevent strictures?
Meet Tom Bright, TOFS Ambassador
Engagement in research studies and developments to improve care and outcomes
Eating, drinking and swallowing difficulties in OA/TOF: What does the research show?
Progress on the tissue engineered oesophagus
Managing common respiratory issues in children born with OA/TOF
Parental mental health in the context of OA/TOF and recommendations for digitalised psychological support
Reflux related issues in in children born with OA/TOF
How our Adult OA/TOF Working Group is making a difference
Reflux related ear, nose & throat (ENT) and dental complications
Meet TOFS Class of 2023
In conversation with Professor Alyn Morice
Singer Tom Bright meets the surgeon who saved his life
Matilda’s OA/TOF story
Respiratory management for children born with OA/TOF live Q&A
Heather’s OA/TOF story
GORD – Gastro Oesophageal Reflux Disease Q&A
Fiona’s OA/TOF story
Shaun’s OA/TOF story
Olivia’s OA/TOF story
Kate’s OA/ TOF story
George’s OA/TOF story
Amber’s OA/TOF story
Feeding and swallowing issues in children born with OA/TOF
Adults born with OA/TOF
Managing the TOF Cough and chest infections with Dr Jane Heraghty
Reflux & strictures following paediatric surgery
My Lived Experience with Anorectal Malformation (ARM)
Adult OA/TOF Working Group
Transition and lifelong management of OA/TOF
OA/TOF feature on BBC radio
Gastro and respiratory information for adults with OA/TOF
Information on applying for benefits for adults and children with OA/TOF (PIP, DLA)
Gastro issues faced by adults born with OA/TOF
Gastro issues faced children born with OA/TOF
GORD – Gastro Oesophageal Reflux Disease
Oesophageal dilatation for children with OA
What is oesophageal achalasia?
Lifelong follow up for oesophageal atresia
The Flourish technique: A new way to repair oesophageal atresia (OA)
Feeding and Nutrition Q&A for OA/TOF Children
The TOF Cough with Professor Alyn Morice
Care and Nutrition in Oesophageal Atresia: An animation for parents
An Introduction to OA/TOF | What is OA TOF? [EA/TEF]
TOFS Class of 2021
2021 TOFS Awareness Week
Managing Reflux, Strictures and Associated Procedures
Key outcomes from the International Medical Conference on OA
TOFS: The Next Phase
Causes of OA/TOF – including the role of twins
How Adult TOFs can get the best care from their GP
Managing respiratory problems in children with OA/TOF
Treatments for GI Problems Experienced by OA/TOF Adults
Specialisation in OA Surgery
The Impact of OA/TOF as Children Grow
The Psychological Well-being of Adults Born with OA
Prevalence of Barrett’s Oesophagus and Oesophageal Cancers Amongst Adults with OA/TOF
Treatments for Barrett’s Oesophagus, Oesophageal Cancer, and other GI Problems
Bridging the Gap From Paediatric to Adult Care for OA/TOFs
How OA/TOF Parents Can Get a Better Service From Their GP
Respiratory Issues Faced by OA/TOF Children
How TOFS Support Research into OA/TOF
Feeding Your OA/TOF Child: Introducing Solids
The Causes of OA/TOF
The Psychological Impact of Rare Medical Conditions
Reflux, Barrett’s and other GI problems in adulthood
Feeding the TOF Child
Moving from Child to Adult Care
Treatment for Early Eating and Feeding Disorders and Tube Weaning
Respiratory Oesophageal Morbidity in Adults with Oesophageal Atresia
Survival of Babies with Oesophageal Atresia
The Past, Present and Future of MDT OA/TOF Clinics
What are the Causes of OA/TOF?
Published by TOFS, The TOF Book is the must have guide for anyone affected by, or caring for someone with OA/TOF.
With contributions from medical experts, the TOF Book contains chapters on every aspect of OA/TOF and VACTERL condition, from infancy to adulthood all presented in an easy-to-understand format.
Join TOFS and be a part of the largest community of parents, careers and those born with OA/TOFs in the world. Find out more…
