Associate Professor Manon Spaander, Erasmus Medical Centre, Rotterdam, has published research about the high prevalence of oesophageal problems amongst Adult TOFs.
Dr Spaander is a board-certified gastroenterologist and associate professor in Gastroenterology at the Department of Gastroenterology at the Erasmus University Medical Center in Rotterdam, the Netherlands. Her focus is Gastrointestinal Oncology with a strong interest in screening of premalignant and (early) neoplastic lesions of the GI tract. She is a member of the advisory board of the VOKS, the Dutch patient foundation for parents and patients with TOF/OA and the VOSP, the Dutch patient foundation for parents and patients with a rare disorder. She participated in the guideline of the European Society for Paediatric Gastroenterology, Hepatology and Nutrition (ESPHGAN) on treatment of benign (refractory) stenosis in children and screening of oesophageal atresia patients.
Since 2012, together with the department of Paediatric Surgery of the Sophia’s Children hospital, Dr Spaander started an oesophageal screening program for patients with oesophageal atresia. This resulted in 2016 in a National OA/TOF consortium, including both clinicians and patient representatives of the VOKS and VOSP with the aim to get more insight in the disease and improve quality of care of TOF/OA patients.
This video was recorded at the Adult TOF Seminar 2018.