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Recommended long term management of patients with repaired TOF/OA and respiratory morbidity

Mild

Defined as SpO2 at rest from 90% to 93% and/or normal-to-slightly abnormal chest radiography and/or FEV1 ≥ 70% predicted and/or FVC ≥ 70% predicted

  • Primary care follow up
  • Prompt aggressive treatment of infection
  • Functional assessment once a year
  • Consider referral to respiratory physician (preferably one experienced with OA/TOF) if clinical deterioration
  • Annual influenza vaccination is recommended in people born with OA/TOF
  • Pneumococcal vaccination is recommended
  • Covid booster is recommended as those with OA/TOF are a vulnerable group

Moderate / Severe

Defined as SpO2 at rest < 90% and/or relevant abnormalities at chest radiography and/or FEV1 < 70% predicted and/or FVC < 70% predicted

  • Regular respiratory physician follow up (preferably one experienced with OA/TOF)
  • Advanced lung imaging at least at baseline
  • Endoscopy
  • Annual influenza vaccination is recommended in people born with OA/TOF
  • Pneumococcal vaccination is recommended
  • Covid booster is recommended as those with OA/TOF are a vulnerable group
References
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