Home » OA/TOF information » OA/TOF Information for Healthcare Professionals » Adult OA/TOF Management Handbook » VACTERL » Anorectal malformations (VACTERL)
(55–90% patients)
These patients represent a complex patient group with ongoing physical and psychological challenges in adulthood. For this group, the onset of adulthood means work, relationships and fertility will be faced for the first time and may mean previously unidentified medical problems are discovered or the known medical issues pose additional difficulties. For the patient and the GP, ongoing medical issues due to anorectal malformation (ARM) are complicated by the lack of experience managing this patient group in adult services. (154) Some may remain under the care of paediatric surgeons, but others are solely managed in general practice, though other specialities involved include urology and general surgery. There is also a lack of a multidisciplinary team approach in the adult setting, unlike management of patients with ARMs in the paediatric setting. Lack of awareness of ARM in adult providers means some patients are reluctant to seek medical support due to perceived lack of knowledge about their conditions. (154)
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