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A patient led, international study of long term outcomes of esophageal atresia

EAT (whose Board is chaired by TOFS Trustee Graham Slater) carried out this major PROM (Patient Reported Outcome Measures) survey in 2014 about long term outcomes of oesophageal atresia.

Long term outcomes of esophageal atresia (OA) are poorly understood. The Federation of Esophageal Atresia and Tracheo-Esophageal Fistula support groups (EAT), a collaboration of patient support groups aimed to define patient reported long term outcomes and quality of life (QoL) in a large international cohort of OA patients.

Evelyn Svoboda, JoAnne Fruithof, Anke Widenmann-Grolig, Graham Slater, Frederic Armand, Bernhard Warner, Simon Eaton, Paolo De  Coppi, Edward Hannon