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VACTERL: Congenital anomalies occurring with OA/TOF booklet.

This booklet is aimed at adults and:

  • Provides information for those born with these rare and complex conditions.
  • Seeks to assist healthcare providers understand the additional malformations and how they may impact each other.
  • Recognises the need for a high-quality transition from children’s services to adult services.
  • Identifies the lifelong nature of some congenital anomalies and how individuals are not always fixed at the initial surgery.
  • Endorses the need for multi-disciplinary, collaborative care pathways to improve health outcomes and quality of life.

For VACTERL support groups, please visit our useful links page.