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X-WR-CALDESC:Events for TOFS | OA/TOF Support
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DTSTART;TZID=Europe/London:20261117T200000
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DTSTAMP:20260922T105512Z
CREATED:20260921T105527Z
LAST-MODIFIED:20260922T105512Z
UID:10000194-1794945600-1794949200@tofs.org.uk
SUMMARY:Meet-up for adults born with OA/TOF (virtual)
DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n\nCLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting.
URL:https://tofs.org.uk/event/meet-up-for-adults-born-with-oa-tof-virtual-5/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/09/11-november-Adult-cuppa-and-chat.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20261201T200000
DTEND;TZID=Europe/London:20261201T210000
DTSTAMP:20261105T110731Z
CREATED:20261104T111457Z
LAST-MODIFIED:20261105T110731Z
UID:10000210-1796155200-1796158800@tofs.org.uk
SUMMARY:Scotland: Virtual meet-up (parents & carers)
DESCRIPTION:Are you the parent or carer of a child born with OA/TOF living in or close to Scotland? Would you like to meet other parents in a similar situation? \nOur team of Scotland TLCs are excited to host this informal virtual meetup and will be using this event to establish the demand for an in-person meetup in the future. \nTOFS members outside of Scotland are also welcome to join the virtual chat! \nWhat can you expect? \n\nQuick introductions from our Scotland team of TOFS Local Contacts – Bruce\, Hannah and Laura-Jayne\nOpportunity to share your experiences and discuss common issues in a safe space\nPeer support from other OA/TOF parents\nA chance to put your area forward for an in-person meetup\n\nThe session will be held via Zoom and pre-booking is essential\, so please register as soon as possible. \nAttendees must be members of the TOFS charity\, so if you are not yet signed up\, please do so here. Membership is free\, but donations are most welcome. \n\nCLICK HERE TO REGISTER\n \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting.
URL:https://tofs.org.uk/event/virtual-scotland-meet-up/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/11/12-Talk-with-TLCs-Social2.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20261205T223000
DTEND;TZID=Europe/London:20261205T233000
DTSTAMP:20260922T110752Z
CREATED:20260921T105902Z
LAST-MODIFIED:20260922T110752Z
UID:10000195-1796509800-1796513400@tofs.org.uk
SUMMARY:International meet-up for adults born with OA/TOF (virtual)
DESCRIPTION:Note: Later UK start time to accommodate international members. \nUK: Saturday\, 5th December – 10.30 PM (2230) \nExample international times:\nAuckland: Sunday 6th December – 11.30 AM\nSydney: Sunday 6th December – 9.30 AM\nUSA Eastern: Saturday\, 5th December – 5.30 PM (1730)\nUSA Pacific: Saturday\, 5th December – 2.30 PM (1430) \n(Zoom will automatically show your local time.) \nCome along and chat with other adults born with OA/TOF from around the world! \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be in attendance. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n\nCLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting.
URL:https://tofs.org.uk/event/international-meet-up-for-adults-born-with-oa-tof-virtual-3/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/09/12-Dec-International-Adult-cuppa-and-chat.png
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