BEGIN:VCALENDAR VERSION:2.0 PRODID:-//TOFS | OA/TOF Support - ECPv6.17.0//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:TOFS | OA/TOF Support X-ORIGINAL-URL:https://tofs.org.uk X-WR-CALDESC:Events for TOFS | OA/TOF Support REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20250330T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20251026T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20260329T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20261025T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20270328T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20271031T010000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=Europe/London:20260910T190000 DTEND;TZID=Europe/London:20260910T200000 DTSTAMP:20260721T115814Z CREATED:20260708T161118Z LAST-MODIFIED:20260721T115814Z UID:10000187-1789066800-1789070400@tofs.org.uk SUMMARY:Live Q&A: Tube feeding DESCRIPTION:Note: This Live Q&A is relevant to both both paediatric and adult patients. \nDo you have questions about tube feeding? Join us for this live Q&A with a panel of experts from BAPEN’s Patient Network Group multi-professional team. \nPre-submit your questions about tube feeding\, parenteral nutrition and all things artificial nutrition. \nThe British Association for Parenteral and Enteral Nutrition (BAPEN) brings together leading multi-disciplinary professional and patient groups and networks from across the UK to help promote the best possible outcomes in nutritional care. \nPatient Network Group\, is a specialist interest (PNG SIG) group within BAPEN. A forum in which Patient Associations can discuss\, collaborate and unite for campaigns and projects to include/raise awareness of the patient/carer’s views of nutrition issues\, especially home artificial nutrition. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n CLICK HERE TO REGISTER\n \nNote\, it may not be possible to answer all questions. Additionally\, questions may be grouped together into subject area. Speakers are unable to give individual clinical advice. \nMeet the panel\n \n \n \n \n \n \nJane FletcherConsultant Nurse for Nutrition and Intestinal Failure\, University Hospitals Birmingham NHS Trust & Honorary Associate Professor\, University of Birmingham \nJane is the Consultant Nurse for Nutrition and Intestinal Failure based at the Queen Elizabeth Hospital Birmingham\, University Hospitals Birmingham NHS Trust where the team care for patients with complex nutritional problems. Jane has an interest in expanding the role of nutrition nurses\, both as independent practitioners and within the wider multi-disciplinary team. She has an interest in research an believes in building the evidence base to promote and underpin excellent nutritional care for patients. She completed her PhD at the University of Birmingham in 2023 and is President Elect of BAPEN. \nCarolyn WheatleyChair\, PNG SIG & Chair\, PINNT \nCarolyn is currently the chair of the PNG SIG and is living with intestinal failure and receives her nutrition and hydration via a central line (home parenteral nutrition). In addition to this role\, she is the current chair of PINNT and has been part of BAPEN since its inception. \nShe has represented PINNT in a wide range of UK and international forums. She is committed to building partnerships and drawing on the experiences of people living with artificial nutrition\, ensuring their voices are heard. By collating lived experiences\, she helps demonstrate the reality of what people live with and cope with every day. \nDr. Theodoric WongConsultant paediatric gastroenterologist/Lead for nutrition support and intestinal failure team\, Birmingham Women’s and Children’s Hospital. \nDr. Theodoric Wong is a Consultant Paediatric Gastroenterologist who leads the nutrition support and intestinal failure team at Birmingham Children’s Hospital\, UK and he also serves as a Clinical Senior Lecturer at Aston Medical School\, Aston University. Dr. Wong has contributed to national guidelines and expert groups on neonatal and paediatric parenteral nutrition including the Neonatal Parenteral Nutrition guidelines (NICE). He has published widely on paediatric nutrition\, short bowel syndrome\, and intestinal failure. He was recently awarded fellowship of the American Society for Parenteral and Enteral Nutrition (FASPEN) in 2026. \nGemma PhillipsPaediatric Dietitian (Home Enteral Nutrition) & Allied Health Professional Research Leader\, Leicestershire Partnership NHS Trust & Doctoral Fellow\, University of Leicester. \nGemma is a HCPC registered Dietitian with over 10 years’ NHS experience in paediatric home enteral nutrition. She works as a senior dietitian and allied health professional research leader at Leicestershire Partnership NHS Trust. Gemma has led research on blended diets for enteral tube feeding and is currently completing her PhD at the University of Leicester as part of a National Institute for Health and Care Research (NIHR) doctoral fellowship. Gemma is co-lead for Research and Audit on the British Dietetic Association’s Parenteral and Enteral Nutrition Specialist Group (PENG) committee. \nLucy HutchinsonLead Nutrition Pharmacist\, Bristol NHS Foundation Trust \nLucy has been a hospital pharmacist at Bristol for 20yrs.  She has spent much of that time working with adults with intestinal failure requiring parenteral support (intravenous feeding)\, both in hospital and at home. \nShe is an independent prescriber\, supporting patients daily with their nutrition and medications.  Lucy is part of the British Pharmaceutical Nutrition Group (BPNG) committee\, which is a special interest group focusing of the pharmaceutical aspects of nutrition.   \nGemma KavanaghLead Nurse\, Nutritional Care Department\, Birmingham Women’s and Children’s NHS Foundation Trust \nGemma joined the Nutritional Care Nursing Team in 2012 and has dedicated her career to supporting children and young people who require artificial nutrition. She is passionate about delivering family-centred care\, empowering parents to confidently manage their child’s nutritional needs at home\, and equipping healthcare professionals with the knowledge and skills to provide safe\, high-quality care. \nIn 2022\, Gemma was appointed as Lead Nurse for the Nutritional Care Nursing Team. In this role\, they lead a dedicated team to drive excellence in clinical practice\, education\, quality improvement\, and service innovation. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/live-qa-tube-feeding/ LOCATION:Online ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/07/tube-feeding-QA.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20260913 DTEND;VALUE=DATE:20260914 DTSTAMP:20260417T131405Z CREATED:20250907T140052Z LAST-MODIFIED:20260417T131405Z UID:10000128-1789257600-1789343999@tofs.org.uk SUMMARY:Great North Run 2026 DESCRIPTION:Applications now closed\n Thank you for your interest in running for TOFS! \nOur 5 places have now been filled but if you have your own ballot place you can still join our team.  \nUse your own ballot place to run for TOFS\nDo you have your own Great North Run ballot place? \nIf you do\, we would love you to join our team and help make a difference to those born unable to swallow. \nYou will receive all the same support as our other runners but there is no entry fee and you can set your own fundraising target. \nPlease complete the form here to let us know so we can get you added to the team. \n  \nRun for TOFS!\nRun for TOFS in the 2026 Great North Run and help to make a difference in the lives of those born unable to swallow.  \n60\,000 determined and dedicated runners make the Great North Run the World’s biggest and best half marathon – famous for its warm North East welcome\, unbeatable atmosphere and the millions raised for good causes. \nEntry fee:\n£50 \nThis fee goes towards the admin fees that the race organisers charge TOFS.  \nFundraising commitment: £500\nThis is the minimum amount (before Gift Aid) that we would expect a participant to raise. But you don’t have to stop there! Most of our previous Great North Run participants have raised a lot more! \nTOFS will support you by offering: \n\nA limited edition TOFS running vest with your name on to wear with pride on your big day; \nTOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too; \nAccess to pre-race support and a social media group just for you\, the TOFS runners \n\nFundraising: Please use People’s Fundraising who charge us much lower fees than some of the other fundraising platforms. This means more of your donations will be passed to TOFS. \nAny Questions? \nGet in touch or give us a call on 01159 613 092. \nMeet our previous GNR Runners!\n https://youtube.com/shorts/E-oqmi0OZIs \nGreat North Run: TOFS Terms and Conditions\n\nYou confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on date of the event.\nYou recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS place or not.\nYou recognise that you apply and (if selected by TOFS) run at your own risk in accordance with standard Great North Run regulations and conditions\, which are in addition to these TOFS terms and conditions.\nYou confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a half marathon.\nYou confirm that you shall (if selected to run for TOFS) diligently undertake the running training that is appropriate as preparation for a half marathon\, in the months preceding the run.\nShould you be accepted to run for TOFS using a TOFS place\, you agree to pay a registration fee to TOFS. This is to cover some administration costs\, and TOFS will ask for a card payment over the telephone or present your cheque for payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place.\nYou confirm that you shall (if allocated a TOFS place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event You must show at least one month before the marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. TOFS strongly recommends the use of Peoples Fundraising.\nIf allocated a TOFS place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £500 (excluding any Gift Aid\, which is to be in addition to the £500) to be received by TOFS by the 30th November 2026.\nAll applications to TOFS are subject to a selection process to ensure that places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so.\nIf allocated a TOFS place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the event. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses.\nYou agree that\, should you withdraw from your place\, you will co-operate and correspond with TOFS and the Great North Run organisers such that another runner chosen by TOFS can take your place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the next year’s event.\nIf you are unable to participate in the Great North Run for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded.\nIf allocated a TOFS place\, you agree that images taken on the day of the event may be used by TOFS to help promote our fundraising efforts.\nYou understand that\, if allocated a TOFS place\, you will be required to also complete in full (and online) the Official Great North Run registration process\, and to confirm to TOFS as soon as you have done so. As this will be done via the GNR website\, you understand you will need to have internet access and access to an email address before this date.\nBy returning this form to TOFS you accept and agree to the terms and conditions listed above. URL:https://tofs.org.uk/event/great-north-run-2026/ LOCATION:Newcastle\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/09/GNR.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20261024 DTEND;VALUE=DATE:20261119 DTSTAMP:20260804T111000Z CREATED:20260317T104801Z LAST-MODIFIED:20260804T111000Z UID:10000167-1792800000-1795046399@tofs.org.uk SUMMARY:Big Splash Swimathon 2026 DESCRIPTION:Take part in our Big Splash Swimathon and help support TOFS while staying active!  \n\nChoose to go it alone or get the whole family involved and set a group target.\nPick your distance from our Mini splash right up to 10K or go freestyle and pick your own.\nGet down to your local pool\, lido or brave the open water.\nDive in!\n\nChoose your distance!\nMini splash = 10 lengths of 25m pool0.5K = 20 lengths of 25m pool1K = 40 lengths of 25m pool3K  = 120 lengths of 25m pool5K = 200 lengths of 25m poolMega splash – 10K = 400 lengths of 25m poolFreestyle – pick your own! \nRegister your Big Splash to get your medal!\nThank you for getting involved in our Big Splash Swimathon. Please complete this form to register so we can reserve your medals. \nTo complete this registration form\, we require a link to your fundraising page. Please set this up first and return back to this form once done.  \nPlease use Just Giving so we can add you to our team. Just visit www.justgiving.com/campaign/tofs-splash-2026 and click on the orange “Start fundraising” button. URL:https://tofs.org.uk/event/big-splash-swimathon-2026/ LOCATION:Various locations CATEGORIES:Fundraising ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/big-splash-icon.png END:VEVENT END:VCALENDAR