Our Patrons/Medical Advisory Group

Our Patrons

The Patrons of the TOFS Charity are highly respected medical professionals who specialise in the TOF condition, and who recognise and promote the TOFS charity. Many have contributed to our books and publications and have spoken at our conferences.

  • Raymond Buick MB BCh FRCS 
  • David Crabbe MD FRCS 
  • Joe Curry MBBS, FRCS(Eng), FRCS (Paed Surg)
  • Paolo De Coppi MD PhD 
  • James Dickson FRCS FRCSE FRCPCH  
  • Bruce Jaffray BMedBiol ChM FRCS (Glas) FRCS (Paed) 
  • Leela Kapila OBE FRCS 
  • Edward Kiely FRCS FRCS(I) FRCPCH 
  • Anthony Lander PhD FRCS (Paed) DCH 
  • Paul D. Losty MD FRCS(I) FRCS(Eng) FRCS(Ed) FRCS (Paed) FEBPS 
  • Gordon A MacKinlay FRCS(Ed) FRCS 
  • Sean Marven FRCS (Paed)  
  • Agostino Pierro MD FRCS(Eng) FRCS(Ed) FAAP 
  • Charles Shaw-Smith BM BCh MRCP PhD 
  • Lewis Spitz PhD FRCS

 

Non-Medical Patrons 

  • Dennis Foxon BA
  • David Griffiths MA (Oxon) 

 

Our Medical Advisory Group

We are pleased to have a multidisciplinary team of experts with a special interest in OA/TOF as members of our Medical Advisory Group (MAG).  The MAG was formed in late 2016.  They advise TOFS on medical matters and help us improve the information that is available to our members.  They are in full support of our mission for lifelong follow up for those with OA/TOF.

  • Dr Kamran Ahmed – General Practitioner (and parent to a TOF child)
  • Elaine Aylott – Retired NHS Commissioner (and grandmother of a TOF)
  • Mr David Crabbe – Consultant Paediatric Surgeon, Leeds General Infirmary
  • Mr Joe Curry – Consultant Paediatric Surgeon, Great Ormond Street Hospital for Children
  • Prof Paolo De Coppi - Consultant Paediatric Surgeon, Great Ormond Street Hospital for Children
  • Mr Stefano Giuliani - Consultant Paediatric Surgeon, Great Ormond Street Hospital for Children
  • Mr Ed Hannon - Consultant Paediatric Surgeon, Great Ormond Street Hospital for Children
  • Mr Matthew Jones - Consultant Paediatric Surgeon, Alder Hey Children's Hospital
  • Mr Tony Lander – Consultant Paediatric Surgeon Birmingham Children’s Hospital
  • Prof Paul Losty – Consultant Paediatric Surgeon, Alder Hey Children’s Hospital
  • Helen Marks – Clinical lead, Speech and Language Therapist, Bristol Royal Hospital for Children
  • Mr Nick Maynard – Upper Gatrointestinal Surgeon, Oxford OesophagoGastric Centre
  • Dr Charles Shaw-Smith – Clinical Geneticist, Royal Devon and Exeter Hospital
  • Dr Nikhil Thapar – Paediatric Gastroenterologist, Great Ormond Street Hospital for Children
  • Emeritus Prof Harish Vyas – Respiratory & Intensive Care, Nottingham Children’s Hospital
  • Dr Vuokko Wallace – Clinical Psychologist, University of Bath (and Adult TOF)
  • Kate Cross - Consultant Surgeon, Speciality Lead for Specialist Neonatal and Paediatric Surgery, Great Ormond Street Hospital
  • Mrs Julia Faulkner – Paediatric Dietitian Somerset NHS Foundation Trust, Musgrove Park Hospital (and parent to a TOF child)
  • Caroline Gainsbury - Senior Nurse, Great Ormond Street Hospital

 

© Tracheo-Oesophageal Fistula Support
TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
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