Support for Adult TOFs

WE SUPPORT ADULTS BORN WITH THE TOF/OA CONDITION

Please do join us as an Adult TOF and join our friendly, welcoming community. It's free. We recognise the growing number of Adult TOFS by having a representation of them amongst our Trustees, along with TOF parents and TOF grandparents!

 

WE RAISE AWARENESS AMONGST HEALTH CARE PROFESSIONALS

We raise awareness amongst health care professionals of ongoing health issues which a significant proportion of those born with TOF/OA have, through our collaboration with organisations like EAT, the European Federation of Esophageal Atresia and Tracheo-Esophageal Fistula Support Groups.

 

We also provide support to Adult TOFs by holding events and providing literature.

 

EVENTS FOR ADULT TOFS

We held an Adult TOF Seminar in London in 2018. You can see videos from it and last year's Conference here. Please keep an eye on our Events page, emails and social media to find out about our workshops specifically for Adults at our Annual Conference in Warrington this October.

 

LITERATURE FOR ADULT TOFS

When you join us as a member we will send you the following literature, which includes our latest newsletter Chew, a leaflet which describes health issues Adult TOFs can face, a GP postcard and three useful cards about the TOF cough, swallowing and needing the toilet.

 

We send hard copies of all of these to our UK members. Due to postal costs, we email copies to members who live abroad. Thank you for your understanding.

 

Adult TOF Membership pack

 

OUR GREEN LEAFLET TOF/OA Adults - Health Issues

 
Green leaflet
 

Our green leaflet gives an introduction for generalist health professionals to the health problems which can affect adults who were born with TOF/OA.

 

GP POSTCARD

 GP Postcard

Our postcard for you to give to your GP highlights the need for lifelong follow up, and states the ESPGHAN guidelines for a referral to a gastroenterologist for investigative endoscopy. You could scan this card into your phone to show health care professionals.

 

THREE USEFUL CARDS 

Useful cards

Our three useful cards are designed to be kept in your purse or wallet and to be brought out when certain situations arise.

 

OUR INFORMATIVE NEWSLETTER CHEW

When you become a member, you will also receive our latest newsletter CHEW three times a year by post (UK only) or email.

 

 

UK MEDICAL PROFESSIONALS WHO TREAT ADULT TOFS

You can see our list of UK medical professionals known to treat Adult TOFs here.

 

TOFS-ENDORSED FACEBOOK GROUP

You can join the TOFS-endorsed, closed Facebook Group specifically for Adults here. Your other Facebook friends won't see what you post in this group unless they are members too. You can also like our Facebook page to keep up to date with our news, and interact with us on Twitter.

 

TOFS' HISTORIC COMMUNITY

We used to have an active forum for everybody affected by TOF/OA. This is no longer active but you can still read the posts for reference only.

 

BUY OUR HIGHLY RATED TOF BOOK FROM AMAZON

The TOF Book

TOFS has published a comprehensive book 'THE TOF BOOK' which contains contributions from leading experts on all aspects of TOF/OA and other related issues, as well stories and advice from and Adult TOFs. It has many highly rated reviews on Amazon. 

Buy your TOF Book from Amazon here

 

© Tracheo-Oesophageal Fistula Support
TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
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