TOFS is managed by a small, dedicated team and supported by volunteers across the UK. Without their help, we could not offer such a high level of support to those born with OA/TOF.
We welcome support from any of our members and have lots of ways you can get involved.
I get asked what advice I would give anyone considering volunteering for a charity. All I can say is… go for it!
Clare Johns, TOFS Trustee
TOFS Trustees are volunteers who share ultimate responsibility for governing a charity and directing how it is managed and play a vital role in the running of the charity.
It’s a great way to put your life and work experiences to use and help to make a difference in the OA/TOF community.
TOFS Local Contacts (TLCs) are a small group of volunteer members with experience of caring for a TOF child on a day-to-day basis.
Spread across the UK, TLCs are available to listen, talk and offer support to new TOF parents, organise local informal get togethers, and take posters and leaflets into hospitals, especially where TOF surgery takes place.
Some TLCs have shown further commitment by giving talks on behalf of TOFS and others are available to visit hospitals to support parents.
Our TLCs are themselves offered information on basic listening and counselling and are given support from both the TOFS office and a Trustee.
If you would like to become a TLC, please contact us. We would love to hear from you.
If you require support and would like to speak to a TLC, please click here.
TOFS receives no government support and relies on fundraising to support our work. To find out more about how you can help, please visit our fundraising page.
We have a number of working groups that help to guide and support the charity. These groups bring together members with a wide range of experiences and include our publication group, adult OA/TOF group and fundraising group to list a few.
If you would like to join a group and get more involved with TOFS, please contact us. We would love to hear from you.
Our Facebook support group is managed by a small, dedicated team of volunteers. They are on hand to answer questions, provide advice and moderate posts. If this is something you would like to get involved with, please let us know.
Help support our runners and fundraisers by becoming a TOFS Event Ambassador.
No experience necessary, just lots of enthusiasm so that we can make the TOFS stand a noisy spectacle.
Interested? Please get in touch.