BEGIN:VCALENDAR VERSION:2.0 PRODID:-//TOFS | OA/TOF Support - ECPv6.15.17.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:TOFS | OA/TOF Support X-ORIGINAL-URL:https://tofs.org.uk X-WR-CALDESC:Events for TOFS | OA/TOF Support REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20240331T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20241027T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20250330T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20251026T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20260329T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20261025T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20270328T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20271031T010000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=Europe/London:20260414T200000 DTEND;TZID=Europe/London:20260414T210000 DTSTAMP:20260420T121726 CREATED:20260318T162243Z LAST-MODIFIED:20260326T114418Z UID:10000168-1776196800-1776200400@tofs.org.uk SUMMARY:Meet-up for adults born with OA/TOF (virtual) DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n\nCLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/meet-up-for-adults-born-with-oa-tof-virtual/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/03/4-April-14-Adult-cuppa-and-chat.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260326T200000 DTEND;TZID=Europe/London:20260326T210000 DTSTAMP:20260420T121726 CREATED:20260224T163655Z LAST-MODIFIED:20260224T163732Z UID:10000166-1774555200-1774558800@tofs.org.uk SUMMARY:Parent & Carer virtual meet-up DESCRIPTION:Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa\, and the opportunity to share experiences\, discuss common issues around OA/TOF and get support in a relaxed\, safe space with people who understand. \nThis is an informal get together\, and we hope will be the start of regular meet-ups to help provide peer support for families in our OA/TOF community. The session will be held via Zoom and hosted by our TLC (TOFS Local Contact) volunteers\, who are all also parents to children born with OA/TOF. \nPre-booking is essential\, so please register as soon as possible. Attendees must be members of the TOFS charity\, so if you are not yet signed up\, please do so here. Membership is free\, but donations are most welcome. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/parent-carer-virtual-meet-up-4/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/02/3-26-Parent-Cuppa-and-chat.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260317T200000 DTEND;TZID=Europe/London:20260317T210000 DTSTAMP:20260420T121726 CREATED:20260129T102855Z LAST-MODIFIED:20260129T114447Z UID:10000161-1773777600-1773781200@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n\nCLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-21/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/01/3B-March2-Adult-cuppa-and-chat.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260307T223000 DTEND;TZID=Europe/London:20260307T233000 DTSTAMP:20260420T121726 CREATED:20260129T101953Z LAST-MODIFIED:20260202T090241Z UID:10000160-1772922600-1772926200@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n\nCLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-20/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/01/3-March-Adult-cuppa-and-chat.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260224T200000 DTEND;TZID=Europe/London:20260224T210000 DTSTAMP:20260420T121726 CREATED:20251210T130911Z LAST-MODIFIED:20251210T130938Z UID:10000158-1771963200-1771966800@tofs.org.uk SUMMARY:OA/TOF: A father’s perspective DESCRIPTION:Are you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about the father’s perspective of having a child born with OA/TOF? \nThis event is open to all members but may be particularly useful for dads and male caregivers\, wishing to meet others in a similar situation. It’s a great opportunity to share experiences and get support. \nThe session will be held via Zoom and hosted by our TLCs\, Alan\, Bruce and Richard – all are volunteers and parents of children born with OA/TOF. \nAny questions about the event or suggestions for inclusion in this discussion can be submitted prior to the event when registering on Zoom or by emailing them to info@tofs.org.uk \nPre-booking is essential\, so please register as soon as possible. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/oa-tof-a-fathers-perspective/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/12/02-24-Fathers-perspective-Cuppa-and-chat.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260205T200000 DTEND;TZID=Europe/London:20260205T210000 DTSTAMP:20260420T121726 CREATED:20251113T172609Z LAST-MODIFIED:20260115T161820Z UID:10000151-1770321600-1770325200@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n\nCLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-19/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/11/05-02-26-Adult-cuppa-and-chat.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260120T110000 DTEND;TZID=Europe/London:20260120T120000 DTSTAMP:20260420T121726 CREATED:20251113T162555Z LAST-MODIFIED:20260115T161843Z UID:10000148-1768906800-1768910400@tofs.org.uk SUMMARY:Parent & Carer virtual meet-up DESCRIPTION:Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa\, and the opportunity to share experiences\, discuss common issues around OA/TOF and get support in a relaxed\, safe space with people who understand. \nThis is an informal get together\, and we hope will be the start of regular meet-ups to help provide peer support for families in our OA/TOF community. The session will be held via Zoom and hosted by our TLC (TOFS Local Contact) volunteers\, who are all also parents to children born with OA/TOF. \nPre-booking is essential\, so please register as soon as possible. Attendees must be members of the TOFS charity\, so if you are not yet signed up\, please do so here. Membership is free\, but donations are most welcome. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n\nCLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/parent-carer-virtual-meet-up-3/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/11/01-22-26-Parent-Cuppa-and-chat-1.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260108T200000 DTEND;TZID=Europe/London:20260108T210000 DTSTAMP:20260420T121726 CREATED:20251113T172157Z LAST-MODIFIED:20251210T131023Z UID:10000150-1767902400-1767906000@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-18/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/11/08-01-26-Adult-cuppa-and-chat.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251211T200000 DTEND;TZID=Europe/London:20251211T210000 DTSTAMP:20260420T121726 CREATED:20251113T171628Z LAST-MODIFIED:20251210T131131Z UID:10000149-1765483200-1765486800@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF [New Date] DESCRIPTION:IMPORTANT UPDATE:This event was originally scheduled to take place on the 4th December. \nCalling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-17/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/11/dec-11-25.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251112T110000 DTEND;TZID=Europe/London:20251112T120000 DTSTAMP:20260420T121726 CREATED:20251003T112504Z LAST-MODIFIED:20251015T114914Z UID:10000132-1762945200-1762948800@tofs.org.uk SUMMARY:Parent & Carer virtual meet-up DESCRIPTION:Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa\, and the opportunity to share experiences\, discuss common issues around OA/TOF and get support in a relaxed\, safe space with people who understand. \nThis is an informal get together\, and we hope will be the start of regular meet-ups to help provide peer support for families in our OA/TOF community. The session will be held via Zoom and hosted by our TLC (TOFS Local Contact) volunteers\, who are all also parents to children born with OA/TOF. \nPre-booking is essential\, so please register as soon as possible. Attendees must be members of the TOFS charity\, so if you are not yet signed up\, please do so here. Membership is free\, but donations are most welcome. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n\nCLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/parent-carer-virtual-meet-up-2/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/10/11-25-Parent-Cuppa-and-chat.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251106T200000 DTEND;TZID=Europe/London:20251106T210000 DTSTAMP:20260420T121726 CREATED:20250812T102630Z LAST-MODIFIED:20250812T102641Z UID:10000126-1762459200-1762462800@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n\n \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n REGISTER HERE\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-5/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/08/cuppa-and-chat-11-Nov25.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251029T160000 DTEND;TZID=Europe/London:20251029T170000 DTSTAMP:20260420T121726 CREATED:20251001T150809Z LAST-MODIFIED:20251023T140247Z UID:10000131-1761753600-1761757200@tofs.org.uk SUMMARY:ERS: Panel discussion on lifelong respiratory care in OA/TOF & CDH DESCRIPTION:The European Respiratory Society (ERS) is holding a webinar which may be of interest to medical professionals with an interest in OA/TOF. \nThe event is co-chaired by Dr Caroline Love\, Chair of our Medical Liaison & Research sub-committee\, author of the Adult OA/TOF Management Handbook and an adult born with OA/TOF. \nEvent details:\n29 October\, 2025 | Online5pm-6pm CET (4pm – 5pm UK) \nChairs: Dr Caroline Love (York\, United Kingdom)\, Prof. Dr Dirk Schramm (Düsseldorf\, Germany) \nSpeakers: Dr Anna Wiemers (Bochum\, Germany)\, Prof. Alyn Morice (Cottingham\, United Kingdom)\, Prof. Dr Rene Wijnen (Rotterdam\, Netherlands) \nFees: Free for ERS members / for non-members \nOverview\nCongenital thoracic anomalies (oesophageal atresia and tracheo-oesophageal fistula\, congenital diaphragmatic hernia) demand seamless collaboration between paediatric and adult pulmonology teams. This webinar addresses critical gaps: \n\nPaediatric specialists lack frameworks for adult-onset complications.\nAdult pulmonologists need paediatric diagnostic insights.\nTrainees require integrated care models.\nSystem fragmentation during care transitions.\n\nDiseases/methods:\n\nPaediatric respiratory diseases\n\nTarget audience\n\nPaediatric pulmonologists\nAdult pulmonologists\nTrainees\nThoracic surgeons\n\n \n CLICK HERE FOR MORE INFORMATION URL:https://tofs.org.uk/event/ers-panel-discussion-on-lifelong-respiratory-care-in-oa-tof-cdh/ LOCATION:Online CATEGORIES:Professional ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/10/ERS-European-Respiratory-Society-logo.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251014T200000 DTEND;TZID=Europe/London:20251014T210000 DTSTAMP:20260420T121726 CREATED:20250926T131855Z LAST-MODIFIED:20251001T112157Z UID:10000130-1760472000-1760475600@tofs.org.uk SUMMARY:Parent & Carer virtual meet-up DESCRIPTION:Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa\, and the opportunity to share experiences\, discuss common issues around OA/TOF and get support in a relaxed\, safe space with people who understand. \nThis is an informal get together\, and we hope will be the start of regular meet-ups to help provide peer support for families in our OA/TOF community. The session will be held via Zoom and hosted by our TLC (TOFS Local Contact) volunteers\, who are all also parents to children born with OA/TOF. \nPre-booking is essential\, so please register as soon as possible. Attendees must be members of the TOFS charity\, so if you are not yet signed up\, please do so here. Membership is free\, but donations are most welcome. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/parent-carer-virtual-meet-up/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/09/Parent-Cuppa-and-chat-14OCT25.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251008T190000 DTEND;TZID=Europe/London:20251008T200000 DTSTAMP:20260420T121726 CREATED:20250514T143508Z LAST-MODIFIED:20250926T131336Z UID:10000117-1759950000-1759953600@tofs.org.uk SUMMARY:Live Q&A: OA/TOF related respiratory issues for adults DESCRIPTION:Are you an adult born with OA/TOF and experiencing respiratory issues\, such as chronic cough\, aspiration\, dysmotility or tracheomalacia? \nJoin us for the upcoming Q&A session with Professor Alyn Morice. \nProfessor Morice is Head of Respiratory Medicine at HYMS\, based at the University of Hull. He is also an Honorary Consultant Physician at Hull and East Yorkshire Hospitals NHS Trust. Professor Morice specialises in the diagnosis and treatment of cough and runs the Hull Cough Clinic. He also runs the Hull Respiratory Clinical Trials Unit\, specialising in the treatment of asthma and COPD. \nProfessor Morice has led the European Respiratory Society and British Thoracic Society Taskforces on Cough. \nSome members may recall Professor Morice’s previous talk on the TOF Cough. \n\nCLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/live-qa-oa-tof-related-respiratory-issues-for-adults/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/05/Oct25-NEW.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251002T200000 DTEND;TZID=Europe/London:20251002T210000 DTSTAMP:20260420T121726 CREATED:20250812T094622Z LAST-MODIFIED:20250812T095638Z UID:10000125-1759435200-1759438800@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n\n \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n REGISTER HERE\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-4/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/08/cuppa-and-chat-10-Oct25.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250909T200000 DTEND;TZID=Europe/London:20250909T210000 DTSTAMP:20260420T121726 CREATED:20250429T101411Z LAST-MODIFIED:20250812T153348Z UID:10000115-1757448000-1757451600@tofs.org.uk SUMMARY:OA/TOF: A father's perspective DESCRIPTION:Are you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about the father’s perspective of having a child born with OA/TOF? \nThis event is open to all members but may be particularly useful for dads and caregivers\, wishing to meet other parents in a similar situation. It’s a great opportunity to share experiences and get support. \nThe session will be held via Zoom and hosted by two of our TLCs\, Alan and Bruce\, both are volunteers and parents of children born with OA/TOF. \nAny questions / suggestions for inclusion in this discussion can be submitted prior to the event when registering on Zoom or by emailing them to info@tofs.org.uk \nPre-booking is essential\, so please register as soon as possible. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/tofs-dads-meet-up/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/TLC-events-Sep-2025.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250904T200000 DTEND;TZID=Europe/London:20250904T210000 DTSTAMP:20260420T121726 CREATED:20250812T085858Z LAST-MODIFIED:20250812T091402Z UID:10000124-1757016000-1757019600@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n\n \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n REGISTER HERE\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-3/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/08/cuppa-and-chat-9-Sep25.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250807T200000 DTEND;TZID=Europe/London:20250807T210000 DTSTAMP:20260420T121726 CREATED:20250711T140446Z LAST-MODIFIED:20250714T105943Z UID:10000123-1754596800-1754600400@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n\nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n\nREGISTER HERE\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-2/ LOCATION:Online ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/07/cuppa-and-chat-august25.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250703T200000 DTEND;TZID=Europe/London:20250703T210000 DTSTAMP:20260420T121726 CREATED:20250403T104335Z LAST-MODIFIED:20250414T103644Z UID:10000109-1751572800-1751576400@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-16/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/july.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250605T200000 DTEND;TZID=Europe/London:20250605T210000 DTSTAMP:20260420T121726 CREATED:20250403T104119Z LAST-MODIFIED:20250414T103542Z UID:10000108-1749153600-1749157200@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-15/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/June.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250501T200000 DTEND;TZID=Europe/London:20250501T210000 DTSTAMP:20260420T121726 CREATED:20250402T112938Z LAST-MODIFIED:20250402T112938Z UID:10000107-1746129600-1746133200@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n\nCLICK HERE TO REGISTER\n \n\n\nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-14/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/may25.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250424T190000 DTEND;TZID=Europe/London:20250424T200000 DTSTAMP:20260420T121726 CREATED:20241126T113022Z LAST-MODIFIED:20250404T091840Z UID:10000092-1745521200-1745524800@tofs.org.uk SUMMARY:TOFS Annual General Meeting DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. \nThe T.O.F.S. Annual General Meeting will take place on the 24th April\, 2025 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates \n \n Click here to register\n \nAGENDA \n1. Welcome and confirmation of quorum 2. Introduction \n3. Apologies for absence \n4. Approval of the minutes of the 2024 AGM held 18 April 2024 \n5. Annual Directors’ Report  \n6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2024)  \n7. Appointment of Accountants   \n8(a) Election of Trustees retiring by rotation and offering themselves for re-election \n• Tamasine Swan• Kate Tyler \n8(b)  Election of new Trustee(s)  \n• To’neill Bala• Vanessa Johnson• Carole Melia \n9.  Any other business \n10. Close of Meeting \nGraham SlaterTrustee/Director & Hon. Secretary \n  \nWho can attend?\nPlease note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. \nTo check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. \nPlease also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). \nIf you have any questions about the AGM\, please contact us. \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. URL:https://tofs.org.uk/event/tofs-annual-general-meeting/ LOCATION:Online CATEGORIES:TOFS ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2020/05/tofs-logo-no-text-500x500-1.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250408T200000 DTEND;TZID=Europe/London:20250408T210000 DTSTAMP:20260420T121726 CREATED:20250214T111646Z LAST-MODIFIED:20250327T084714Z UID:10000104-1744142400-1744146000@tofs.org.uk SUMMARY:Talk with TLCs: Top tips for travelling with your child born with OA/TOF DESCRIPTION:Are you planning on taking your child born with OA/TOF away on holiday? \nWhether going away in the UK or abroad\, as parents\, our TLCs Naomi and To’neill understand the worry of what to pack\, managing medications/equipment\, and what food will be available… \nSo\, join them in sharing their top tips when travelling! \n \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/talk-with-tlcs-top-tips-for-travelling-with-your-child-born-with-oa-tof/ LOCATION:Online CATEGORIES:Parents & Carers,Support ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/02/Talk-with-TLCs-Travelling-tips.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250403T200000 DTEND;TZID=Europe/London:20250403T210000 DTSTAMP:20260420T121726 CREATED:20250310T162433Z LAST-MODIFIED:20250310T162500Z UID:10000106-1743710400-1743714000@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n\n \n \n REGISTER HERE\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/03/cuppa-and-chat-april2.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250312T183000 DTEND;TZID=Europe/London:20250312T193000 DTSTAMP:20260420T121726 CREATED:20241212T113557Z LAST-MODIFIED:20250227T171103Z UID:10000095-1741804200-1741807800@tofs.org.uk SUMMARY:Live Q&A: Managing medications effectively DESCRIPTION:Do you have any questions or concerns around the medications you or your child may take? \nJoin Consultant Pharmacist Gastroenterologist Anja St Clair Jones\, and Lead Neonatal Pharmacist Christian Chadwick\, for this live Q&A session. \nAll adults and parents welcome! \n \nMeet the speakers\nChristian Chadwick \nChristian is the Lead Pharmacist for Neonatal Care at the Royal Sussex County Hospital in Brighton\, home to the largest and only surgical Neonatal Intensive Care Unit serving Kent\, Surrey\, and Sussex. \nIn addition to his hospital role\, Christian serves as the Pharmacy Lead for Neonatal Care across the Kent\, Surrey & Sussex region. He collaborates with pharmacists and multidisciplinary healthcare teams to optimise medicines use for newborns across 13 hospitals providing neonatal care in the area. \nChristian is also an active member of the UK Neonatal and Paediatric Pharmacy Group\, contributing to national advancements in neonatal care as part of its Neonatology Committee. \nAnja St. Clair Jones \nAnja qualified as a pharmacist in Switzerland in 1987 and has since practiced as a clinical pharmacist in the United Kingdom.  \nIn 2011 Anja completed an MSc in Advance Pharmacy Practice at University College London whilst leading the surgical team at the Brighton and Sussex University Hospitals NHS Trust. \nIn 2012 as an independent prescriber she established drug monitoring clinics for immunosuppressants used in gastroenterology and supervises the biologics infusion clinic\, optimising and managing these therapies for the local IBD population. She leads the pharmaceutical service to the multidisciplinary Sussex Operational Delivery Network (ODN) providing regional services for viral hepatitis and hepatology inpatient and outpatient care. \nIn 2016 she gained the title of Consultant Pharmacist Gastroenterology with the remit to promote pharmacy services in Gastroenterology and is a Fellow of the RPS. \nAnja is a committee member of the Gastroenterology and Hepatology Interest Group of the United Kingdom Clinical Pharmacy Association (UKCPA) and is the 2021 recipient of the prestigious UKCPA Outstanding Achievement Award. Anja was also a member of the national IBD Standards Steering group actively promoting specialised pharmacy practice until 2022. National and international publications showcase pharmaceutical care in the gastroenterology field and encourage and inspire young pharmacists to strive for excellence in pharmacy practice. \n \n CLICK HERE TO REGISTER URL:https://tofs.org.uk/event/live-qa-managing-medications-effectively/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/12/Chew-Adverts-6.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250306T200000 DTEND;TZID=Europe/London:20250306T210000 DTSTAMP:20260420T121726 CREATED:20241216T112514Z LAST-MODIFIED:20250115T110032Z UID:10000098-1741291200-1741294800@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n\n \n \n REGISTER HERE\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-12/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-march-1.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250305T150000 DTEND;TZID=Europe/London:20250305T160000 DTSTAMP:20260420T121726 CREATED:20250303T122830Z LAST-MODIFIED:20250303T122915Z UID:10000105-1741186800-1741190400@tofs.org.uk SUMMARY:ERNICA: A traumatic Diagnosis - the (early) parent-child interaction in (rare) chronic paediatric diseases DESCRIPTION:ERNICA – the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies have an upcoming webinar which may be useful for TOFS members. \nTitle:\nA traumatic Diagnosis – the (early) parent-child interaction in (rare) chronic paediatric diseases \nWhen:\nWednesday 5 March at 3pm (UK) / 4pm (CET) \nBook: \nhttps://events.teams.microsoft.com/event/08ac7def-4022-4d2e-a5c7-7e08feadf9e4@526638ba-6af3-4b0f-a532-a1a511f4ac80 \nAbout the webinar: \nReceiving a diagnosis for a serious condition in a child is a life-changing moment for parents. This webinar will delve into both the clinical and research perspectives on this challenging experience\, providing insights into how healthcare professionals can better support families through the diagnostic process. \nWe will explore the emotional and psychological impact on parents\, common barriers to understanding\, and strategies to help families navigate this journey. Join us for an in-depth discussion aimed at enhancing the care and communication surrounding paediatric diagnoses. The moderator of this webinar will be Dr. Vuokko Wallace (University of Bath). \n\nCLICK HERE TO REGISTER URL:https://tofs.org.uk/event/ernica-a-traumatic-diagnosis-the-early-parent-child-interaction-in-rare-chronic-paediatric-diseases/ LOCATION:Online CATEGORIES:Parents & Carers,Professional,Support ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2022/11/EARNICA_400x400.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250213T200000 DTEND;TZID=Europe/London:20250213T210000 DTSTAMP:20260420T121726 CREATED:20241218T094525Z LAST-MODIFIED:20241218T094816Z UID:10000100-1739476800-1739480400@tofs.org.uk SUMMARY:Starting Nursery\, Pre-school\, and School - Talk with TLCs DESCRIPTION:Do you have a child born with OA/TOF starting nursery\, preschool or school soon? Join our Talk with TLCs session to speak to other parents and share experiences.  \nThe session will be held via Zoom and hosted by two of our TOFS Local Contacts (TLCs)\, Naomi Webborn and Cara Macdonald – both are volunteers and parents of children born with OA/TOF. \nThe session is free of charge to members of TOFS. \nPre-booking is essential. \nQuestions can be submitted prior to the event by emailing them in to info@tofs.org.uk \n \n CLICK HERE TO REGISTER\n \n\n\nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/starting-nursery-pre-school-and-school-talk-with-tlcs-2/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/Feb25-School-Talk-with-TLCs.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250206T200000 DTEND;TZID=Europe/London:20250206T210000 DTSTAMP:20260420T121726 CREATED:20241216T113119Z LAST-MODIFIED:20250115T105344Z UID:10000097-1738872000-1738875600@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n\n\nREGISTER HERE\n\n\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-13/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-Feb.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250129T190000 DTEND;TZID=Europe/London:20250129T200000 DTSTAMP:20260420T121726 CREATED:20241211T143050Z LAST-MODIFIED:20241212T172302Z UID:10000094-1738177200-1738180800@tofs.org.uk SUMMARY:Live Q&A: Long term OA/TOF related gastro issues DESCRIPTION:Are you an adult born with OA/TOF experiencing gastro related issues then please join us for our next live Q&A webinar with Professor Nick Maynard. \nProfessor Maynard is a leading consultant upper GI surgeon based in Oxford\, with over twenty-five years of experience in his field. \nAs one of the leading upper GI surgeons in the country\, Professor Maynard is particularly experienced in upper gastrointestinal laparoscopy and endoscopy procedures. He is also an expert in treating adults who have had treatment for oesophageal atresia (OA) and tracheo-oesophageal fistula (TOF). \nProfessor Maynard has been Consultant Upper GI surgeon at Oxford University Hospitals NHS Foundation Trust since 1997. He has been the Director for Cancer Services for Oxford University Hospitals from 2017 to 2022\, and Associate Professor of Surgery at Oxford University. \nIf you wish to attend\, please click here to book your place. \n\nCLICK HERE TO BOOK\n\n\n \n\n\nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. URL:https://tofs.org.uk/event/live-qa-long-term-oa-tof-related-gastro-issues/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/Chew-Adverts2.png END:VEVENT END:VCALENDAR