BEGIN:VCALENDAR VERSION:2.0 PRODID:-//TOFS | OA/TOF Support - ECPv6.18.2//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:TOFS | OA/TOF Support X-ORIGINAL-URL:https://tofs.org.uk X-WR-CALDESC:Events for TOFS | OA/TOF Support REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20240331T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20241027T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20250330T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20251026T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20260329T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20261025T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20270328T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20271031T010000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=Europe/London:20261103T110000 DTEND;TZID=Europe/London:20261103T120000 DTSTAMP:20261014T094442Z CREATED:20261014T094332Z LAST-MODIFIED:20261014T094442Z UID:10000202-1793703600-1793707200@tofs.org.uk SUMMARY:Parent & Carer meet-up (virtual) DESCRIPTION:Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa\, and the opportunity to share experiences\, discuss common issues around OA/TOF and get support in a relaxed\, safe space with people who understand. \nThis is an informal get together\, and we hope will be the start of regular meet-ups to help provide peer support for families in our OA/TOF community. The session will be held via Zoom and hosted by our TLC (TOFS Local Contact) volunteers\, who are all also parents to children born with OA/TOF. \nPre-booking is essential\, so please register as soon as possible. Attendees must be members of the TOFS charity\, so if you are not yet signed up\, please do so here. Membership is free\, but donations are most welcome. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/parent-carer-meet-up-virtual-2/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/10/11-nov-Parent-chat-FBINSTA.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20261020T200000 DTEND;TZID=Europe/London:20261020T210000 DTSTAMP:20260923T094627Z CREATED:20260818T100610Z LAST-MODIFIED:20260923T094627Z UID:10000189-1792526400-1792530000@tofs.org.uk SUMMARY:OA/TOF: A father’s perspective DESCRIPTION:Are you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about the father’s perspective of having a child born with OA/TOF? \nThis event is open to all members but may be particularly useful for dads and male caregivers\, wishing to meet others in a similar situation. It’s a great opportunity to share experiences and get support. \nThe session will be held via Zoom and hosted by our TLCs\, Alan\, Bruce and Richard – all are volunteers and parents of children born with OA/TOF. \nAny questions about the event or suggestions for inclusion in this discussion can be submitted prior to the event when registering on Zoom or by emailing them to info@tofs.org.uk \nPre-booking is essential\, so please register as soon as possible. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n\nCLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/oa-tof-a-fathers-perspective-3/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/08/10-20-OCT-Fathers-perspective-Cuppa-and-chat.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20261013T200000 DTEND;TZID=Europe/London:20261013T210000 DTSTAMP:20260921T104506Z CREATED:20260921T103124Z LAST-MODIFIED:20260921T104506Z UID:10000193-1791921600-1791925200@tofs.org.uk SUMMARY:Meet-up for adults born with OA/TOF (virtual) DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/meet-up-for-adults-born-with-oa-tof-virtual-4/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/09/10-October-Adult-cuppa-and-chat.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260912T223000 DTEND;TZID=Europe/London:20260912T233000 DTSTAMP:20260729T092940Z CREATED:20260729T091058Z LAST-MODIFIED:20260729T092940Z UID:10000188-1789252200-1789255800@tofs.org.uk SUMMARY:International meet-up for adults born with OA/TOF (virtual) DESCRIPTION:Note: Later UK start time to accommodate international members. \nUK: Saturday\, 12th September – 10.30 PM (2230) \nExample international times:Auckland: Sunday 13th September – 9.30am Sydney: Sunday 13th September – 7.30amUSA Eastern: Saturday\, 12th September – 5.30pm (1730)USA Pacific: Saturday\, 12th September – 2.30pm (1430) \n(Zoom will automatically show your local time.) \nCalling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be in attendance. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/international-meet-up-for-adults-born-with-oa-tof-virtual-2/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/07/9-September-International-Adult-cuppa-and-chat.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260910T190000 DTEND;TZID=Europe/London:20260910T200000 DTSTAMP:20261019T151632Z CREATED:20260708T161118Z LAST-MODIFIED:20261019T151632Z UID:10000187-1789066800-1789070400@tofs.org.uk SUMMARY:Live Q&A: Tube feeding DESCRIPTION:Note: This Live Q&A is relevant to both paediatric and adult patients. \nDo you have questions about tube feeding? Join us for this live Q&A with a panel of experts from BAPEN’s Patient Network Group multi-professional team. \nPre-submit your questions about tube feeding\, parenteral nutrition and all things artificial nutrition. \nThe British Association for Parenteral and Enteral Nutrition (BAPEN) brings together leading multi-disciplinary professional and patient groups and networks from across the UK to help promote the best possible outcomes in nutritional care. \nPatient Network Group\, is a specialist interest (PNG SIG) group within BAPEN. A forum in which Patient Associations can discuss\, collaborate and unite for campaigns and projects to include/raise awareness of the patient/carer’s views of nutrition issues\, especially home artificial nutrition. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n CLICK HERE TO REGISTER\n \nNote\, it may not be possible to answer all questions. Additionally\, questions may be grouped together into subject area. Speakers are unable to give individual clinical advice. \nMeet the panel\n \n \n \n \n \n \nJane FletcherConsultant Nurse for Nutrition and Intestinal Failure\, University Hospitals Birmingham NHS Trust & Honorary Associate Professor\, University of Birmingham \nJane is the Consultant Nurse for Nutrition and Intestinal Failure based at the Queen Elizabeth Hospital Birmingham\, University Hospitals Birmingham NHS Trust where the team care for patients with complex nutritional problems. Jane has an interest in expanding the role of nutrition nurses\, both as independent practitioners and within the wider multi-disciplinary team. She has an interest in research an believes in building the evidence base to promote and underpin excellent nutritional care for patients. She completed her PhD at the University of Birmingham in 2023 and is President Elect of BAPEN. \nCarolyn WheatleyChair\, PNG SIG & Chair\, PINNT \nCarolyn is currently the chair of the PNG SIG and is living with intestinal failure and receives her nutrition and hydration via a central line (home parenteral nutrition). In addition to this role\, she is the current chair of PINNT and has been part of BAPEN since its inception. \nShe has represented PINNT in a wide range of UK and international forums. She is committed to building partnerships and drawing on the experiences of people living with artificial nutrition\, ensuring their voices are heard. By collating lived experiences\, she helps demonstrate the reality of what people live with and cope with every day. \nDr. Theodoric WongConsultant paediatric gastroenterologist/Lead for nutrition support and intestinal failure team\, Birmingham Women’s and Children’s Hospital. \nDr. Theodoric Wong is a Consultant Paediatric Gastroenterologist who leads the nutrition support and intestinal failure team at Birmingham Children’s Hospital\, UK and he also serves as a Clinical Senior Lecturer at Aston Medical School\, Aston University. Dr. Wong has contributed to national guidelines and expert groups on neonatal and paediatric parenteral nutrition including the Neonatal Parenteral Nutrition guidelines (NICE). He has published widely on paediatric nutrition\, short bowel syndrome\, and intestinal failure. He was recently awarded fellowship of the American Society for Parenteral and Enteral Nutrition (FASPEN) in 2026. \nGemma PhillipsPaediatric Dietitian (Home Enteral Nutrition) & Allied Health Professional Research Leader\, Leicestershire Partnership NHS Trust & Doctoral Fellow\, University of Leicester. \nGemma is a HCPC registered Dietitian with over 10 years’ NHS experience in paediatric home enteral nutrition. She works as a senior dietitian and allied health professional research leader at Leicestershire Partnership NHS Trust. Gemma has led research on blended diets for enteral tube feeding and is currently completing her PhD at the University of Leicester as part of a National Institute for Health and Care Research (NIHR) doctoral fellowship. Gemma is co-lead for Research and Audit on the British Dietetic Association’s Parenteral and Enteral Nutrition Specialist Group (PENG) committee. \nLucy HutchinsonLead Nutrition Pharmacist\, Bristol NHS Foundation Trust \nLucy has been a hospital pharmacist at Bristol for 20yrs.  She has spent much of that time working with adults with intestinal failure requiring parenteral support (intravenous feeding)\, both in hospital and at home. \nShe is an independent prescriber\, supporting patients daily with their nutrition and medications.  Lucy is part of the British Pharmaceutical Nutrition Group (BPNG) committee\, which is a special interest group focusing of the pharmaceutical aspects of nutrition.   \nGemma KavanaghLead Nurse\, Nutritional Care Department\, Birmingham Women’s and Children’s NHS Foundation Trust \nGemma joined the Nutritional Care Nursing Team in 2012 and has dedicated her career to supporting children and young people who require artificial nutrition. She is passionate about delivering family-centred care\, empowering parents to confidently manage their child’s nutritional needs at home\, and equipping healthcare professionals with the knowledge and skills to provide safe\, high-quality care. \nIn 2022\, Gemma was appointed as Lead Nurse for the Nutritional Care Nursing Team. In this role\, they lead a dedicated team to drive excellence in clinical practice\, education\, quality improvement\, and service innovation. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/live-qa-tube-feeding/ LOCATION:Online ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/07/tube-feeding-QA.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260825T200000 DTEND;TZID=Europe/London:20260825T210000 DTSTAMP:20260605T140537Z CREATED:20260605T131324Z LAST-MODIFIED:20260605T140537Z UID:10000186-1787688000-1787691600@tofs.org.uk SUMMARY:Meet-up for adults born with OA/TOF (virtual) DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/meet-up-for-adults-born-with-oa-tof-virtual-3/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/06/8-August-Adult-cuppa-and-chat.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260721T200000 DTEND;TZID=Europe/London:20260721T210000 DTSTAMP:20260605T131059Z CREATED:20260605T120348Z LAST-MODIFIED:20260605T131059Z UID:10000185-1784664000-1784667600@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-22/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/06/7-July-Adult-cuppa-and-chat.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260714T200000 DTEND;TZID=Europe/London:20260714T210000 DTSTAMP:20260521T112350Z CREATED:20260519T092629Z LAST-MODIFIED:20260521T112350Z UID:10000182-1784059200-1784062800@tofs.org.uk SUMMARY:Parent & Carer virtual meet-up DESCRIPTION:Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa\, and the opportunity to share experiences\, discuss common issues around OA/TOF and get support in a relaxed\, safe space with people who understand. \nThis is an informal get together\, and we hope will be the start of regular meet-ups to help provide peer support for families in our OA/TOF community. The session will be held via Zoom and hosted by our TLC (TOFS Local Contact) volunteers\, who are all also parents to children born with OA/TOF. \nPre-booking is essential\, so please register as soon as possible. Attendees must be members of the TOFS charity\, so if you are not yet signed up\, please do so here. Membership is free\, but donations are most welcome. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n\nCLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/parent-carer-virtual-meet-up-5/ LOCATION:Online CATEGORIES:Parents & Carers,Support ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/05/7-Jul-26-Parent-Cuppa-and-chat.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260616T200000 DTEND;TZID=Europe/London:20260616T210000 DTSTAMP:20260521T112148Z CREATED:20260424T142052Z LAST-MODIFIED:20260521T112148Z UID:10000176-1781640000-1781643600@tofs.org.uk SUMMARY:OA/TOF: A father’s perspective DESCRIPTION:Are you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about the father’s perspective of having a child born with OA/TOF? \nThis event is open to all members but may be particularly useful for dads and male caregivers\, wishing to meet others in a similar situation. It’s a great opportunity to share experiences and get support. \nThe session will be held via Zoom and hosted by our TLCs\, Alan\, Bruce and Richard – all are volunteers and parents of children born with OA/TOF. \nAny questions about the event or suggestions for inclusion in this discussion can be submitted prior to the event when registering on Zoom or by emailing them to info@tofs.org.uk \nPre-booking is essential\, so please register as soon as possible. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n\nCLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/oa-tof-a-fathers-perspective-2/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/04/06-16-JUNE-Fathers-perspective-Cuppa-and-chat.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260613T223000 DTEND;TZID=Europe/London:20260613T233000 DTSTAMP:20260521T085753Z CREATED:20260326T125040Z LAST-MODIFIED:20260521T085753Z UID:10000170-1781389800-1781393400@tofs.org.uk SUMMARY:International meet-up for adults born with OA/TOF (virtual) DESCRIPTION:Note: Later UK time to accommodate international members.\nUK: \nSaturday\, 13th June – 10.30 PM (2230) \nInternational:Auckland – Sunday\, 14th June – 9.30 AMSydney – Sunday\, 14th June – 7.30 AMUSA Eastern – Saturday\, 13th June – 5.30 PM (1730) \nCalling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n\nCLICK HERE TO REGISTER URL:https://tofs.org.uk/event/international-meet-up-for-adults-born-with-oa-tof-virtual/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/03/6-June-Adult-cuppa-and-chat.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260512T193000 DTEND;TZID=Europe/London:20260512T203000 DTSTAMP:20260326T143602Z CREATED:20260326T143342Z LAST-MODIFIED:20260326T143602Z UID:10000171-1778614200-1778617800@tofs.org.uk SUMMARY:Parent & carer meet-up (virtual) DESCRIPTION:Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa\, and the opportunity to share experiences\, discuss common issues around OA/TOF and get support in a relaxed\, safe space with people who understand. \nThis is an informal get together\, and we hope will be the start of regular meet-ups to help provide peer support for families in our OA/TOF community. The session will be held via Zoom and hosted by our TLC (TOFS Local Contact) volunteers\, who are all also parents to children born with OA/TOF. \nPre-booking is essential\, so please register as soon as possible. Attendees must be members of the TOFS charity\, so if you are not yet signed up\, please do so here. Membership is free\, but donations are most welcome. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n CLICK HERE TO REGISTER URL:https://tofs.org.uk/event/parent-carer-meet-up-virtual/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/03/5-Jun-26-Parent-Cuppa-and-chat.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260507T190000 DTEND;TZID=Europe/London:20260507T200000 DTSTAMP:20260409T132723Z CREATED:20251127T124724Z LAST-MODIFIED:20260409T132723Z UID:10000153-1778180400-1778184000@tofs.org.uk SUMMARY:TOFS Annual General Meeting DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. \nThe T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. \n \n CLICK HERE TO REGISTER\n \nAGENDA\n1. Welcome and confirmation of quorum \n2. Introduction \n3. Apologies for absence \n4. Approval of the minutes of the 2025 AGM held 24th of April 2025 \n5. Annual Directors’ Report  \n6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  \n7. Re-appointment of accountants \n8. Election of Trustees retiring by rotation and offering themselves for re-election \na. Clare Johnsb. Darrell Hill \n9. Election of Trustee \na. Kate Tyler \n10. Any other business \n11. Close of Meeting \n To’neill BalaTrustee & Hon. Secretary \n  \nWho can attend?\nPlease note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. \nTo check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. \nPlease also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). \nIf you have any questions about the AGM\, please contact us. \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. URL:https://tofs.org.uk/event/tofs-annual-general-meeting-2/ LOCATION:Online CATEGORIES:TOFS ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2020/05/tofs-logo-no-text-500x500-1.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260505T200000 DTEND;TZID=Europe/London:20260505T210000 DTSTAMP:20260326T124813Z CREATED:20260326T122522Z LAST-MODIFIED:20260326T124813Z UID:10000169-1778011200-1778014800@tofs.org.uk SUMMARY:Meet-up for adults born with OA/TOF (virtual) DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/meet-up-for-adults-born-with-oa-tof-virtual-2/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/03/5-May-Adult-cuppa-and-chat.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260414T200000 DTEND;TZID=Europe/London:20260414T210000 DTSTAMP:20260326T114418Z CREATED:20260318T162243Z LAST-MODIFIED:20260326T114418Z UID:10000168-1776196800-1776200400@tofs.org.uk SUMMARY:Meet-up for adults born with OA/TOF (virtual) DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n\nCLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/meet-up-for-adults-born-with-oa-tof-virtual/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/03/4-April-14-Adult-cuppa-and-chat.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260326T200000 DTEND;TZID=Europe/London:20260326T210000 DTSTAMP:20260224T163732Z CREATED:20260224T163655Z LAST-MODIFIED:20260224T163732Z UID:10000166-1774555200-1774558800@tofs.org.uk SUMMARY:Parent & Carer virtual meet-up DESCRIPTION:Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa\, and the opportunity to share experiences\, discuss common issues around OA/TOF and get support in a relaxed\, safe space with people who understand. \nThis is an informal get together\, and we hope will be the start of regular meet-ups to help provide peer support for families in our OA/TOF community. The session will be held via Zoom and hosted by our TLC (TOFS Local Contact) volunteers\, who are all also parents to children born with OA/TOF. \nPre-booking is essential\, so please register as soon as possible. Attendees must be members of the TOFS charity\, so if you are not yet signed up\, please do so here. Membership is free\, but donations are most welcome. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/parent-carer-virtual-meet-up-4/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/02/3-26-Parent-Cuppa-and-chat.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260317T200000 DTEND;TZID=Europe/London:20260317T210000 DTSTAMP:20260129T114447Z CREATED:20260129T102855Z LAST-MODIFIED:20260129T114447Z UID:10000161-1773777600-1773781200@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n\nCLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-21/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/01/3B-March2-Adult-cuppa-and-chat.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260307T223000 DTEND;TZID=Europe/London:20260307T233000 DTSTAMP:20260202T090241Z CREATED:20260129T101953Z LAST-MODIFIED:20260202T090241Z UID:10000160-1772922600-1772926200@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n\nCLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-20/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/01/3-March-Adult-cuppa-and-chat.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260224T200000 DTEND;TZID=Europe/London:20260224T210000 DTSTAMP:20251210T130938Z CREATED:20251210T130911Z LAST-MODIFIED:20251210T130938Z UID:10000158-1771963200-1771966800@tofs.org.uk SUMMARY:OA/TOF: A father’s perspective DESCRIPTION:Are you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about the father’s perspective of having a child born with OA/TOF? \nThis event is open to all members but may be particularly useful for dads and male caregivers\, wishing to meet others in a similar situation. It’s a great opportunity to share experiences and get support. \nThe session will be held via Zoom and hosted by our TLCs\, Alan\, Bruce and Richard – all are volunteers and parents of children born with OA/TOF. \nAny questions about the event or suggestions for inclusion in this discussion can be submitted prior to the event when registering on Zoom or by emailing them to info@tofs.org.uk \nPre-booking is essential\, so please register as soon as possible. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/oa-tof-a-fathers-perspective/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/12/02-24-Fathers-perspective-Cuppa-and-chat.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260205T200000 DTEND;TZID=Europe/London:20260205T210000 DTSTAMP:20260115T161820Z CREATED:20251113T172609Z LAST-MODIFIED:20260115T161820Z UID:10000151-1770321600-1770325200@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n\nCLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-19/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/11/05-02-26-Adult-cuppa-and-chat.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260120T110000 DTEND;TZID=Europe/London:20260120T120000 DTSTAMP:20260115T161843Z CREATED:20251113T162555Z LAST-MODIFIED:20260115T161843Z UID:10000148-1768906800-1768910400@tofs.org.uk SUMMARY:Parent & Carer virtual meet-up DESCRIPTION:Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa\, and the opportunity to share experiences\, discuss common issues around OA/TOF and get support in a relaxed\, safe space with people who understand. \nThis is an informal get together\, and we hope will be the start of regular meet-ups to help provide peer support for families in our OA/TOF community. The session will be held via Zoom and hosted by our TLC (TOFS Local Contact) volunteers\, who are all also parents to children born with OA/TOF. \nPre-booking is essential\, so please register as soon as possible. Attendees must be members of the TOFS charity\, so if you are not yet signed up\, please do so here. Membership is free\, but donations are most welcome. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n\nCLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/parent-carer-virtual-meet-up-3/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/11/01-22-26-Parent-Cuppa-and-chat-1.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260108T200000 DTEND;TZID=Europe/London:20260108T210000 DTSTAMP:20251210T131023Z CREATED:20251113T172157Z LAST-MODIFIED:20251210T131023Z UID:10000150-1767902400-1767906000@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-18/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/11/08-01-26-Adult-cuppa-and-chat.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251211T200000 DTEND;TZID=Europe/London:20251211T210000 DTSTAMP:20251210T131131Z CREATED:20251113T171628Z LAST-MODIFIED:20251210T131131Z UID:10000149-1765483200-1765486800@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF [New Date] DESCRIPTION:IMPORTANT UPDATE:This event was originally scheduled to take place on the 4th December. \nCalling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-17/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/11/dec-11-25.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251112T110000 DTEND;TZID=Europe/London:20251112T120000 DTSTAMP:20251015T114914Z CREATED:20251003T112504Z LAST-MODIFIED:20251015T114914Z UID:10000132-1762945200-1762948800@tofs.org.uk SUMMARY:Parent & Carer virtual meet-up DESCRIPTION:Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa\, and the opportunity to share experiences\, discuss common issues around OA/TOF and get support in a relaxed\, safe space with people who understand. \nThis is an informal get together\, and we hope will be the start of regular meet-ups to help provide peer support for families in our OA/TOF community. The session will be held via Zoom and hosted by our TLC (TOFS Local Contact) volunteers\, who are all also parents to children born with OA/TOF. \nPre-booking is essential\, so please register as soon as possible. Attendees must be members of the TOFS charity\, so if you are not yet signed up\, please do so here. Membership is free\, but donations are most welcome. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n\nCLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/parent-carer-virtual-meet-up-2/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/10/11-25-Parent-Cuppa-and-chat.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251106T200000 DTEND;TZID=Europe/London:20251106T210000 DTSTAMP:20250812T102641Z CREATED:20250812T102630Z LAST-MODIFIED:20250812T102641Z UID:10000126-1762459200-1762462800@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n\n \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n REGISTER HERE\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-5/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/08/cuppa-and-chat-11-Nov25.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251029T160000 DTEND;TZID=Europe/London:20251029T170000 DTSTAMP:20251023T140247Z CREATED:20251001T150809Z LAST-MODIFIED:20251023T140247Z UID:10000131-1761753600-1761757200@tofs.org.uk SUMMARY:ERS: Panel discussion on lifelong respiratory care in OA/TOF & CDH DESCRIPTION:The European Respiratory Society (ERS) is holding a webinar which may be of interest to medical professionals with an interest in OA/TOF. \nThe event is co-chaired by Dr Caroline Love\, Chair of our Medical Liaison & Research sub-committee\, author of the Adult OA/TOF Management Handbook and an adult born with OA/TOF. \nEvent details:\n29 October\, 2025 | Online5pm-6pm CET (4pm – 5pm UK) \nChairs: Dr Caroline Love (York\, United Kingdom)\, Prof. Dr Dirk Schramm (Düsseldorf\, Germany) \nSpeakers: Dr Anna Wiemers (Bochum\, Germany)\, Prof. Alyn Morice (Cottingham\, United Kingdom)\, Prof. Dr Rene Wijnen (Rotterdam\, Netherlands) \nFees: Free for ERS members / for non-members \nOverview\nCongenital thoracic anomalies (oesophageal atresia and tracheo-oesophageal fistula\, congenital diaphragmatic hernia) demand seamless collaboration between paediatric and adult pulmonology teams. This webinar addresses critical gaps: \n\nPaediatric specialists lack frameworks for adult-onset complications.\nAdult pulmonologists need paediatric diagnostic insights.\nTrainees require integrated care models.\nSystem fragmentation during care transitions.\n\nDiseases/methods:\n\nPaediatric respiratory diseases\n\nTarget audience\n\nPaediatric pulmonologists\nAdult pulmonologists\nTrainees\nThoracic surgeons\n\n \n CLICK HERE FOR MORE INFORMATION URL:https://tofs.org.uk/event/ers-panel-discussion-on-lifelong-respiratory-care-in-oa-tof-cdh/ LOCATION:Online CATEGORIES:Professional ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/10/ERS-European-Respiratory-Society-logo.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251014T200000 DTEND;TZID=Europe/London:20251014T210000 DTSTAMP:20251001T112157Z CREATED:20250926T131855Z LAST-MODIFIED:20251001T112157Z UID:10000130-1760472000-1760475600@tofs.org.uk SUMMARY:Parent & Carer virtual meet-up DESCRIPTION:Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa\, and the opportunity to share experiences\, discuss common issues around OA/TOF and get support in a relaxed\, safe space with people who understand. \nThis is an informal get together\, and we hope will be the start of regular meet-ups to help provide peer support for families in our OA/TOF community. The session will be held via Zoom and hosted by our TLC (TOFS Local Contact) volunteers\, who are all also parents to children born with OA/TOF. \nPre-booking is essential\, so please register as soon as possible. Attendees must be members of the TOFS charity\, so if you are not yet signed up\, please do so here. Membership is free\, but donations are most welcome. \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/parent-carer-virtual-meet-up/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/09/Parent-Cuppa-and-chat-14OCT25.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251008T190000 DTEND;TZID=Europe/London:20251008T200000 DTSTAMP:20250926T131336Z CREATED:20250514T143508Z LAST-MODIFIED:20250926T131336Z UID:10000117-1759950000-1759953600@tofs.org.uk SUMMARY:Live Q&A: OA/TOF related respiratory issues for adults DESCRIPTION:Are you an adult born with OA/TOF and experiencing respiratory issues\, such as chronic cough\, aspiration\, dysmotility or tracheomalacia? \nJoin us for the upcoming Q&A session with Professor Alyn Morice. \nProfessor Morice is Head of Respiratory Medicine at HYMS\, based at the University of Hull. He is also an Honorary Consultant Physician at Hull and East Yorkshire Hospitals NHS Trust. Professor Morice specialises in the diagnosis and treatment of cough and runs the Hull Cough Clinic. He also runs the Hull Respiratory Clinical Trials Unit\, specialising in the treatment of asthma and COPD. \nProfessor Morice has led the European Respiratory Society and British Thoracic Society Taskforces on Cough. \nSome members may recall Professor Morice’s previous talk on the TOF Cough. \n\nCLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/live-qa-oa-tof-related-respiratory-issues-for-adults/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/05/Oct25-NEW.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251002T200000 DTEND;TZID=Europe/London:20251002T210000 DTSTAMP:20250812T095638Z CREATED:20250812T094622Z LAST-MODIFIED:20250812T095638Z UID:10000125-1759435200-1759438800@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n\n \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n REGISTER HERE\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-4/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/08/cuppa-and-chat-10-Oct25.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250909T200000 DTEND;TZID=Europe/London:20250909T210000 DTSTAMP:20250812T153348Z CREATED:20250429T101411Z LAST-MODIFIED:20250812T153348Z UID:10000115-1757448000-1757451600@tofs.org.uk SUMMARY:OA/TOF: A father's perspective DESCRIPTION:Are you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about the father’s perspective of having a child born with OA/TOF? \nThis event is open to all members but may be particularly useful for dads and caregivers\, wishing to meet other parents in a similar situation. It’s a great opportunity to share experiences and get support. \nThe session will be held via Zoom and hosted by two of our TLCs\, Alan and Bruce\, both are volunteers and parents of children born with OA/TOF. \nAny questions / suggestions for inclusion in this discussion can be submitted prior to the event when registering on Zoom or by emailing them to info@tofs.org.uk \nPre-booking is essential\, so please register as soon as possible. \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/tofs-dads-meet-up/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/TLC-events-Sep-2025.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250904T200000 DTEND;TZID=Europe/London:20250904T210000 DTSTAMP:20250812T091402Z CREATED:20250812T085858Z LAST-MODIFIED:20250812T091402Z UID:10000124-1757016000-1757019600@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n\n \nPlease note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n REGISTER HERE\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-3/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/08/cuppa-and-chat-9-Sep25.png END:VEVENT END:VCALENDAR