BEGIN:VCALENDAR VERSION:2.0 PRODID:-//TOFS | OA/TOF Support - ECPv6.15.17.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://tofs.org.uk X-WR-CALDESC:Events for TOFS | OA/TOF Support REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20230326T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20231029T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20240331T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20241027T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20250330T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20251026T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20260329T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20261025T010000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=Europe/London:20250501T200000 DTEND;TZID=Europe/London:20250501T210000 DTSTAMP:20260418T193451 CREATED:20250402T112938Z LAST-MODIFIED:20250402T112938Z UID:10000107-1746129600-1746133200@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n\nCLICK HERE TO REGISTER\n \n\n\nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-14/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/may25.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250424T190000 DTEND;TZID=Europe/London:20250424T200000 DTSTAMP:20260418T193451 CREATED:20241126T113022Z LAST-MODIFIED:20250404T091840Z UID:10000092-1745521200-1745524800@tofs.org.uk SUMMARY:TOFS Annual General Meeting DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. \nThe T.O.F.S. Annual General Meeting will take place on the 24th April\, 2025 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates \n \n Click here to register\n \nAGENDA \n1. Welcome and confirmation of quorum 2. Introduction \n3. Apologies for absence \n4. Approval of the minutes of the 2024 AGM held 18 April 2024 \n5. Annual Directors’ Report  \n6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2024)  \n7. Appointment of Accountants   \n8(a) Election of Trustees retiring by rotation and offering themselves for re-election \n• Tamasine Swan• Kate Tyler \n8(b)  Election of new Trustee(s)  \n• To’neill Bala• Vanessa Johnson• Carole Melia \n9.  Any other business \n10. Close of Meeting \nGraham SlaterTrustee/Director & Hon. Secretary \n  \nWho can attend?\nPlease note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. \nTo check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. \nPlease also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). \nIf you have any questions about the AGM\, please contact us. \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. URL:https://tofs.org.uk/event/tofs-annual-general-meeting/ LOCATION:Online CATEGORIES:TOFS ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2020/05/tofs-logo-no-text-500x500-1.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250408T200000 DTEND;TZID=Europe/London:20250408T210000 DTSTAMP:20260418T193451 CREATED:20250214T111646Z LAST-MODIFIED:20250327T084714Z UID:10000104-1744142400-1744146000@tofs.org.uk SUMMARY:Talk with TLCs: Top tips for travelling with your child born with OA/TOF DESCRIPTION:Are you planning on taking your child born with OA/TOF away on holiday? \nWhether going away in the UK or abroad\, as parents\, our TLCs Naomi and To’neill understand the worry of what to pack\, managing medications/equipment\, and what food will be available… \nSo\, join them in sharing their top tips when travelling! \n \n \n CLICK HERE TO REGISTER\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/talk-with-tlcs-top-tips-for-travelling-with-your-child-born-with-oa-tof/ LOCATION:Online CATEGORIES:Parents & Carers,Support ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/02/Talk-with-TLCs-Travelling-tips.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250403T200000 DTEND;TZID=Europe/London:20250403T210000 DTSTAMP:20260418T193451 CREATED:20250310T162433Z LAST-MODIFIED:20250310T162500Z UID:10000106-1743710400-1743714000@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n\n \n \n REGISTER HERE\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/03/cuppa-and-chat-april2.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250312T183000 DTEND;TZID=Europe/London:20250312T193000 DTSTAMP:20260418T193451 CREATED:20241212T113557Z LAST-MODIFIED:20250227T171103Z UID:10000095-1741804200-1741807800@tofs.org.uk SUMMARY:Live Q&A: Managing medications effectively DESCRIPTION:Do you have any questions or concerns around the medications you or your child may take? \nJoin Consultant Pharmacist Gastroenterologist Anja St Clair Jones\, and Lead Neonatal Pharmacist Christian Chadwick\, for this live Q&A session. \nAll adults and parents welcome! \n \nMeet the speakers\nChristian Chadwick \nChristian is the Lead Pharmacist for Neonatal Care at the Royal Sussex County Hospital in Brighton\, home to the largest and only surgical Neonatal Intensive Care Unit serving Kent\, Surrey\, and Sussex. \nIn addition to his hospital role\, Christian serves as the Pharmacy Lead for Neonatal Care across the Kent\, Surrey & Sussex region. He collaborates with pharmacists and multidisciplinary healthcare teams to optimise medicines use for newborns across 13 hospitals providing neonatal care in the area. \nChristian is also an active member of the UK Neonatal and Paediatric Pharmacy Group\, contributing to national advancements in neonatal care as part of its Neonatology Committee. \nAnja St. Clair Jones \nAnja qualified as a pharmacist in Switzerland in 1987 and has since practiced as a clinical pharmacist in the United Kingdom.  \nIn 2011 Anja completed an MSc in Advance Pharmacy Practice at University College London whilst leading the surgical team at the Brighton and Sussex University Hospitals NHS Trust. \nIn 2012 as an independent prescriber she established drug monitoring clinics for immunosuppressants used in gastroenterology and supervises the biologics infusion clinic\, optimising and managing these therapies for the local IBD population. She leads the pharmaceutical service to the multidisciplinary Sussex Operational Delivery Network (ODN) providing regional services for viral hepatitis and hepatology inpatient and outpatient care. \nIn 2016 she gained the title of Consultant Pharmacist Gastroenterology with the remit to promote pharmacy services in Gastroenterology and is a Fellow of the RPS. \nAnja is a committee member of the Gastroenterology and Hepatology Interest Group of the United Kingdom Clinical Pharmacy Association (UKCPA) and is the 2021 recipient of the prestigious UKCPA Outstanding Achievement Award. Anja was also a member of the national IBD Standards Steering group actively promoting specialised pharmacy practice until 2022. National and international publications showcase pharmaceutical care in the gastroenterology field and encourage and inspire young pharmacists to strive for excellence in pharmacy practice. \n \n CLICK HERE TO REGISTER URL:https://tofs.org.uk/event/live-qa-managing-medications-effectively/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/12/Chew-Adverts-6.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250306T200000 DTEND;TZID=Europe/London:20250306T210000 DTSTAMP:20260418T193451 CREATED:20241216T112514Z LAST-MODIFIED:20250115T110032Z UID:10000098-1741291200-1741294800@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n\n \n \n REGISTER HERE\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-12/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-march-1.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250305T150000 DTEND;TZID=Europe/London:20250305T160000 DTSTAMP:20260418T193451 CREATED:20250303T122830Z LAST-MODIFIED:20250303T122915Z UID:10000105-1741186800-1741190400@tofs.org.uk SUMMARY:ERNICA: A traumatic Diagnosis - the (early) parent-child interaction in (rare) chronic paediatric diseases DESCRIPTION:ERNICA – the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies have an upcoming webinar which may be useful for TOFS members. \nTitle:\nA traumatic Diagnosis – the (early) parent-child interaction in (rare) chronic paediatric diseases \nWhen:\nWednesday 5 March at 3pm (UK) / 4pm (CET) \nBook: \nhttps://events.teams.microsoft.com/event/08ac7def-4022-4d2e-a5c7-7e08feadf9e4@526638ba-6af3-4b0f-a532-a1a511f4ac80 \nAbout the webinar: \nReceiving a diagnosis for a serious condition in a child is a life-changing moment for parents. This webinar will delve into both the clinical and research perspectives on this challenging experience\, providing insights into how healthcare professionals can better support families through the diagnostic process. \nWe will explore the emotional and psychological impact on parents\, common barriers to understanding\, and strategies to help families navigate this journey. Join us for an in-depth discussion aimed at enhancing the care and communication surrounding paediatric diagnoses. The moderator of this webinar will be Dr. Vuokko Wallace (University of Bath). \n\nCLICK HERE TO REGISTER URL:https://tofs.org.uk/event/ernica-a-traumatic-diagnosis-the-early-parent-child-interaction-in-rare-chronic-paediatric-diseases/ LOCATION:Online CATEGORIES:Parents & Carers,Professional,Support ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2022/11/EARNICA_400x400.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250213T200000 DTEND;TZID=Europe/London:20250213T210000 DTSTAMP:20260418T193451 CREATED:20241218T094525Z LAST-MODIFIED:20241218T094816Z UID:10000100-1739476800-1739480400@tofs.org.uk SUMMARY:Starting Nursery\, Pre-school\, and School - Talk with TLCs DESCRIPTION:Do you have a child born with OA/TOF starting nursery\, preschool or school soon? Join our Talk with TLCs session to speak to other parents and share experiences.  \nThe session will be held via Zoom and hosted by two of our TOFS Local Contacts (TLCs)\, Naomi Webborn and Cara Macdonald – both are volunteers and parents of children born with OA/TOF. \nThe session is free of charge to members of TOFS. \nPre-booking is essential. \nQuestions can be submitted prior to the event by emailing them in to info@tofs.org.uk \n \n CLICK HERE TO REGISTER\n \n\n\nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/starting-nursery-pre-school-and-school-talk-with-tlcs-2/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/Feb25-School-Talk-with-TLCs.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250206T200000 DTEND;TZID=Europe/London:20250206T210000 DTSTAMP:20260418T193451 CREATED:20241216T113119Z LAST-MODIFIED:20250115T105344Z UID:10000097-1738872000-1738875600@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n\n\nREGISTER HERE\n\n\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-13/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-Feb.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250129T190000 DTEND;TZID=Europe/London:20250129T200000 DTSTAMP:20260418T193451 CREATED:20241211T143050Z LAST-MODIFIED:20241212T172302Z UID:10000094-1738177200-1738180800@tofs.org.uk SUMMARY:Live Q&A: Long term OA/TOF related gastro issues DESCRIPTION:Are you an adult born with OA/TOF experiencing gastro related issues then please join us for our next live Q&A webinar with Professor Nick Maynard. \nProfessor Maynard is a leading consultant upper GI surgeon based in Oxford\, with over twenty-five years of experience in his field. \nAs one of the leading upper GI surgeons in the country\, Professor Maynard is particularly experienced in upper gastrointestinal laparoscopy and endoscopy procedures. He is also an expert in treating adults who have had treatment for oesophageal atresia (OA) and tracheo-oesophageal fistula (TOF). \nProfessor Maynard has been Consultant Upper GI surgeon at Oxford University Hospitals NHS Foundation Trust since 1997. He has been the Director for Cancer Services for Oxford University Hospitals from 2017 to 2022\, and Associate Professor of Surgery at Oxford University. \nIf you wish to attend\, please click here to book your place. \n\nCLICK HERE TO BOOK\n\n\n \n\n\nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. URL:https://tofs.org.uk/event/live-qa-long-term-oa-tof-related-gastro-issues/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/Chew-Adverts2.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250102T200000 DTEND;TZID=Europe/London:20250102T210000 DTSTAMP:20260418T193451 CREATED:20241216T112411Z LAST-MODIFIED:20241217T155920Z UID:10000096-1735848000-1735851600@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n\n\nClick Here to Register\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-11/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-Jan-2.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20241216T190000 DTEND;TZID=Europe/London:20241216T200000 DTSTAMP:20260418T193451 CREATED:20241209T165550Z LAST-MODIFIED:20241209T165655Z UID:10000093-1734375600-1734379200@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n\n\nClick Here to Register\n\n\n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-10/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-l6dec.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20241205T190000 DTEND;TZID=Europe/London:20241205T200000 DTSTAMP:20260418T193451 CREATED:20241112T151836Z LAST-MODIFIED:20241112T151857Z UID:10000089-1733425200-1733428800@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n CLICK HERE TO REGISTER\n \n\n \n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-9/ LOCATION:Online ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/11/cuppa-and-chat-05dec25.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20241107T190000 DTEND;TZID=Europe/London:20241107T200000 DTSTAMP:20260418T193451 CREATED:20241010T080802Z LAST-MODIFIED:20241010T080802Z UID:10000085-1731006000-1731009600@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n\nCLICK HERE TO REGISTER\n \n\n\n \n\n\nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-8/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/05/cuppa-and-chat-coffee.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20241024T190000 DTEND;TZID=Europe/London:20241024T200000 DTSTAMP:20260418T193451 CREATED:20240920T161219Z LAST-MODIFIED:20240920T161303Z UID:10000084-1729796400-1729800000@tofs.org.uk SUMMARY:Live Q&A: Feeding experiences and oral aversion DESCRIPTION:Please join us for our next live Q&A on issues with feeding experiences and oral aversion for those born with OA/TOF. \nFor this session\, we will be joined by Maya Asir. \nMaya is the lead for the inpatient Speech and Language Therapy service at Evelina London Children’s Hospital. She has been a paediatric Speech and Language Therapist for 18 years\, and is also a Lactation Consultant. She specialises in complex infant feeding and dysphagia in neonatology. \nMaya has worked with families with children born with OA/TOF and is passionate about their feeding journeys and optimising their future outcomes and relationship with eating and drinking. \n \n CLICK HERE TO BOOK URL:https://tofs.org.uk/event/live-qa-feeding-experiences-and-oral-aversion/ LOCATION:Online CATEGORIES:Adult TOF,Parents & Carers ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/09/Event-Pin-Feeding-Experiences-and-Oral-Aversion.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20241001T200000 DTEND;TZID=Europe/London:20241001T210000 DTSTAMP:20260418T193451 CREATED:20240730T140649Z LAST-MODIFIED:20240730T140844Z UID:10000080-1727812800-1727816400@tofs.org.uk SUMMARY:Reflux management: Talk with TLCs DESCRIPTION:Do you have a child born with OA/TOF and have questions about managing reflux? \nJoin our Talk with TLCs online session and meet other parents in a similar situation. It’s a great opportunity to share experiences and get support. \nThe session will be held via Zoom and hosted by two of our TLCs\, To’neill and Naomi\, both are volunteers and parents of children born with OA/TOF. \nAny questions can be submitted prior to the event by emailing them to info@tofs.org.uk \nPre-booking is essential\, so please register as soon as possible. \n \n CLICK HERE TO BOOK URL:https://tofs.org.uk/event/reflux-management-talk-with-tlcs/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/07/TLC-events-ads-13.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20241001T183000 DTEND;TZID=Europe/London:20241001T193000 DTSTAMP:20260418T193451 CREATED:20240905T094756Z LAST-MODIFIED:20241010T161453Z UID:10000082-1727807400-1727811000@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n CLICK HERE TO REGISTER\n \n \n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-7/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/05/cuppa-and-chat-coffee.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20240903T190000 DTEND;TZID=Europe/London:20240903T200000 DTSTAMP:20260418T193451 CREATED:20240611T122438Z LAST-MODIFIED:20240823T112702Z UID:10000077-1725390000-1725393600@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OATOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n CLICK HERE TO REGISTER\n \n \nUsing Zoom\nIn order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. \nThe following video goes over the basic controls you can use while in a Zoom meeting. \nhttps://www.youtube.com/watch?v=78fn4r6fhns URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-6/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/05/cuppa-and-chat-coffee.png END:VEVENT END:VCALENDAR