Video information resources - for parents/carers and Adult TOFs!

TOFS organises events for members so that they may share information, talk to medical professionals and share experiences with other families and Adult TOFs.  Time and logistics are just two of the factors that make it difficult for everyone to attend, and with members in over 55 countries it would be impossible to make one event suit all!

Ideally, we'd like the entire TOF/OA community to benefit from the information that's shared at these events, so, in addition to producing reports in our members-only newsletter, Chew, in more recent times, we have budgeted to have sessions videoed for those who are unable to attend. This certainly doesn't replicate the benefits of meeting fellow members first-hand, but hopefully it might help with information-gathering.

Scroll down for links to these videos, along with others that should help the TOF/OA community.  Some of the conference/seminar videos are quite lengthy, but worth watching.  We are so grateful to the esteemed medical professionals who give their time freely, especially when, to enable membership to attend, most of our events take place over weekends.

Have a watch - and let us know what you think!

 

New to the world of TOF/OA?

This seven-minute animation is a comforting and easily followed introduction to TOF/OA.  A must-watch if you're expecting and have had a likely TOF/OA diagnosis, or if your little one has recently been born.
Watch our NEW easy-to-understand introduction to TOF/OA
23rd March 2019

Upper GI complications of TOF/OA in adulthood

Consultant Gastroenterologist, Dr Bernard Stacey MD FRCP, from University Hospitals Southampton NHS Foundation Trust, speaks to a group of Hampshire's local General Practitioners (GPs) about tracheo-oesophageal fistula and oesophageal atresia.
Long-term GI Complications by Dr Bernard Stacey MD FRCP
31st January 2019

Adult TOF Seminar 2018

We are delighted to have organised the world's biggest gathering of Adult TOFs in London in June 2018.  They gathered with their partners and family members to hear from four expert speakers - and to demonstrate that Adult TOFs would like something done, please, to improve their healthcare situation.  

Watch the presentations here now.

Prevalence of Barrett’s Oesophagus and Oesophageal Cancers
21st August 2018
Prof does TOF Cough
21st August 2018
Treatments for Barrett's Oesophagus and Oesophageal Cancer, and other GI problems
21st August 2018

The TOFS Family Conference 2018.

The TOFS family conference is often the highlight in the TOFS' calendar - and 2018 was no exception.  It's an occasion for TOF families to get together and share experiences, and for healthcare practitioners to get involved with TOFS and talk about the TOF condition.  

The 2018 event was held in the Holiday Inn, Coventry.  Have a watch and tell us what you think.  In 2019, we will have a conference for families and Adult TOFs.  Click here for full information and booking details.

Dr Harriet Tucker
13th October 2018
Dr Kamran Ahmed G.P.
13th October 2018
Dr Satish Rao
13th October 2018
Graham Slater
13th October 2018
Mr Tony Lander
13th October 2018
Mrs Julia Faulkner
13th October 2018
Dr Charles Shaw-Smith
13th October 2018
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TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
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