We help everybody who was born with OA and TOF

We help everyone who was born with OA or TOF and the people who care for them.

Whether you have a child or relative with OA/TOF, you have OA/TOF yourself, or you are a Healthcare Professional with an interest in these conditions, we are here to help you. 

Become a member of TOFS

Join TOFS today and receive your free member’s pack, and our informative newsletter Chew three times a year. You’ll also be able to contact your local TOFS’ Local Contact (TLC) in your area (UK) if you wish.

Our Member's Pack


Understand the OA/TOF conditions better

Access our free leaflets about OA/TOF and become better informed about these conditions. You may also wish to buy our highly informative The TOF Book, which has many independent 5-star reviews on Amazon.


Come to our Events

Keep an eye on our Events page so you can come to our events and meet other people in your situation, and learn more about the OA/TOF condition from leading specialists.



Join us on Social Media

You can get lots of support from our closed Facebook Group which has in excess of 3,000 members. It is a closed group, which means that your other Facebook friends won’t see what you post unless they are members of the group too. This group is open to everyone affected by OA/TOF from parents of children with OA/TOF to Adult TOFS. You will have to answer some simple questions to join.

If you have a teenager or you are an Adult TOF you may also like to join the only TOFS endorsed Adult TOF Facebook Group. It is specifically for Adult TOFs and teenagers.

We also have a Facebook Page and are on Twitter.


Please contact us

Any questions? Please email the office info@tofs.org.uk or phone 0115 9613092. Our staff are not medically qualified but we will always try our best to help you.

© Tracheo-Oesophageal Fistula Support
TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
Website by Altido

Our team at TOFS is working tirelessly to bring you the latest advice regarding Coronavirus. The support and advice we provide are only possible thanks to kind donations from people like you. If you're able, please consider donating now.