Why Join TOFS?

When you JOIN THE TOFS CHARITY you open the door to all sorts of additional support and become part of the family of all those who are involved with TOF– parents, grandparents, adults with TOF, teachers, doctors, nurses, and many more

How much does it cost? Nothing—membership is free, but we do ask those who can afford to do so to make an annual or monthly donation to held towards the cost of running the charity.

What are the benefits? 

1.       You will receive emotional support, friendship and practical advice from people who are in a similar situation to you in a friendly, supportive and international community.

2.       You can access and receive support, if you need it, from TOFS' Local Contacts (TLCs).

3.       You will be kept informed about TOF/OA news through regular emails and 3x yearly copies of CHEW, our informative newsletter, delivered to you for free by post or email.

4.       You will be the first to hear about exclusive Member Only events.

5.       You will meet from other TOF/OA families at conferences, meetings and parties

6.       You will be eligible to vote at our Annual General Meetings and shape how TOFS is run in the future.

7.       You will benefit from the wealth of knowledge that our Trustees have about TOF/OA.

8.       You can help influence and inform medical professionals and benefit current and future TOF/OA families.

9.       You will be part of a structured community which collaborates with other TOF/rare disease organisations and professional medical bodies in the UK and abroad.

When you join TOFS the medical information you provide (optional) is helping us to build a bigger picture of the TOF condition which will eventually benefit others in the UK and beyond. All our information is held securely and treated as strictly confidential. Any information used for medical research will be completely anonymous.


© Tracheo-Oesophageal Fistula Support
TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
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