Today is the Big Help Out, a festival of volunteering to commemorate the Coronation. So, it is the ideal time to take a look at the accomplishments of one of our volunteer groups, the Adult TOF Working Group and to thank all our amazing volunteers for all their help.
Here’s just a little of what they have contributed to, or achieved, since the group formed in September 2021.
Producing helpful guides
Our Adult TOF Working group produced both our “Adult OA/TOF Management Handbook” and our “Improving Health Outcomes” booklet.
These were created to help fill the knowledge gap of a rare and complex condition and to help GPs understand, treat and signpost treatment to the appropriate specialist when needed.
Pocket-sized health passport
Handy sized (A7) 4 page booklet is perfect to quickly share information about your own or your child’s OA/TOF.
Producing and contributing to videos and Chew articles
Members of our Adult TOF Working Group have been instrumental in creating videos sharing their experiences of being an adult born with OA/TOF. They are also regular contributors to our Chew magazine.
Representing TOFS at medical conferences
Devising gastric/respiratory appropriate literature, banners, posters and attendance at events for
- British Society of Gastroenterologists (BSG)
- British Society of Paediatric Gastroenterologists Hepatologists and Nutritionists
- (BSPGHAN)
- Association of Upper Gastrointestinal Surgery of Great Britain and Ireland (AUGIS)
- British Thoracic Society (BTS)
