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TOFS Awareness Week 2024

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Buy The TOF Book

Published by TOFS, "The TOF Book" is the must have guide for anyone affected by, or caring for someone with OA/TOF.

Upcoming Events

Join us at one of our free events for TOFS members.


Virtual meet-up for adults born with OA/TOF


Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with

Big Splash Swimathon 2024

Various locations

Take part in our Big Splash Swimathon and help support TOFS while staying active! Choose to go it alone or get the whole family involved and set a group target.Pick your

TOFS Annual General Meeting 2024


Members and associates are invited to join us for the 2024 Annual General Meeting of T.O.F.S.More information and a full agenda will be published closer to the event.Please contact the

Support TOFS

Can You Support Our Work?

TOFS receives no support from the Government and relies completely on donations from our supporters.

Regular donations are extremely important to TOFS. By choosing to give a regular monthly donation, you will help us to plan ahead and make long-term improvements for people with OA/TOF and associated conditions all over the world.