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Information for people born with OA/TOF

Information for healthcare professionals

Information for parents or carers

Information for people born with OA/TOF

Information for healthcare professionals

Adults born with OA/TOF

Hear from our adult OA/TOF community

Discover our stories

Meet Tom Bright TOFS Ambassador

Discover Tom's story of being born with OA/TOF

Find out more

CLIP-lowres-TOFS-Ross-Jeavons-BBC-South-Today-HORIZONTAL-NO-CAPTIONS_94.jpeg

OA / TOF featured on BBC News

Watch Ross & Katie on BBC South Today

Watch the full interview

We were born with OA/TOF

Hear from our OA/TOF community

Discover our stories

Can you help us continue our work?

We offer lifelong support for those born with OA/TOF but can only do it with your help.

Support TOFS

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Latest news

Come along & cheer on our 2025 London Marathon team!

Watch: OA/TOF: Causes, genetics and the “lost twin” hypothesis

Vacancy: Membership support and events officer

Vacancy: Communication and project support officer

Long term OATOF related gastro issues with Prof. Nick Maynard

Watch: Long term OATOF related gastro issues Q&A

Join us for the TOFS Annual General Meeting

TOFS Ambassador Charlotte Fisher with son Elton

TOFS Ambassador raises over £2000!

Watch TOFS Ambassador Tom Bright on TV

Click for more news stories

Seminar round-up

Click to see videos & photos from our Bristol event.

Latest video

OA/TOF: Causes, genetics and the “lost twin” hypothesis

Stay in touch with us. Sign up as TOFS Supporter today!

Do you need support?

TOFS offer a wide range of support for anyone affected by OA/TOF.

Meet Britain's oldest OA/TOF

Read Jeni’s remarkable story here.

Join

TOFS

When you join the TOFS charity you open the door to all sorts of additional support and become part of our extended TOF family.

Members include parents, grandparents and careers of children with TOF, adults with TOF, and health care professionals.

Upcoming Events

Join us at one of our free events for TOFS members.

Apr 30

30th April - 3rd May

InoEA 25

1st May - 8pm - Virtual meet-up for adults born with OA/TOF

May 1

8:00pm - 9:00pm

Virtual meet-up for adults born with OA/TOF

Jun 5

8:00pm - 9:00pm

Virtual meet-up for adults born with OA/TOF

Buy The TOF Book

Published by TOFS, "The TOF Book" is the must have guide for anyone affected by, or caring for someone with OA/TOF.

Support TOFS

Can You Support Our Work?

TOFS receives no support from the Government and relies completely on donations from our supporters.

Regular donations are extremely important to TOFS. By choosing to give a regular monthly donation, you will help us to plan ahead and make long-term improvements for people with OA/TOF and associated conditions all over the world.

Monthly

£6.00

RECURRING

Monthly

£20.00

RECURRING

or click here to donate any other amount

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