Stuart’s Story
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TOFS attend major respiratory conference
This Thursday and Friday sees some of our trustees and volunteers representing TOFS at the British Thoracic Society’s Summer Meeting in Manchester. Huge thanks to Caroline Love, Emma Grant and
Join Columbia University Irving Medical Center this Sunday (5pm UK) for a progress update on the CARE EA/TEF Study which many members of TOFS participated in. The study which examines
Run the Virtual London Marathon at your own pace, on your own route!
The Virtual London Marathon is back for 2022. This is your chance to be a part of the world’s biggest marathon and earn the highly coveted official finisher’s medal and souvenir T-shirt. The Virtual TCS
40 days of fundraising rides off to a £4k start!
TOFS’ 40 Days of Fundraising got off to a great start last week with the RideLondon 100 cycle event on the 29th May. Due to Covid, this major bike ride
CONCORD study publishes findings
Many TOFS members may remember taking part in the CONCORD study to explore preferences for different models of care coordination for people with rare diseases. The 30-month study from the
Emotional well-being and support group survey
TOFS is part of the Federation of Esophageal Atresia and Tracheo-esophageal fistula – otherwise known as EAT. This international collection of patient groups promotes education and awareness of OA/TOF around
When you join the TOFS charity you open the door to all sorts of additional support and become part of our extended TOF family.
Members include parents, grandparents and careers of children with TOF, adults with TOF, and health care professionals.
Join us at one of free events for TOFS members.
Baked 1000s of cakes
Run 100s of miles
and played 40 ukuleles!
TOFS receives no support from the Government and relies completely on donations from our supporters.
Regular donations are extremely important to TOFS. By choosing to give a regular monthly donation, you will help us to plan ahead and make long-term improvements for people with OA/TOF and associated conditions all over the world.
