TOFS publishes vaccine recommendation letter
We understand that some adults born with OA/TOF experience resistance from their GP when requesting vaccines to help prevent respiratory viruses. TOFS has published a letter which we hope will
TOFS publishes vaccine recommendation letter
We understand that some adults born with OA/TOF experience resistance from their GP when requesting vaccines to help prevent respiratory viruses. TOFS has published a letter which we hope will
Please join us for our next live Q&A session with Paediatric Respiratory Consultant, Dr Rebecca Thursfield on the 6th of December. Dr Thursfield manages children with a range of respiratory conditions including cough,
New Christmas card designs for 2023!
No need to worry about postal delays or excessive stamp costs. For one simple donation, you can share your Christmas wishes with your loved ones wherever they live. Check out
Watch: Reflux related issues in in children born with OA/TOF Q&A
Our latest Q&A session, “Reflux related issues in children born with OA/TOF”, is now live. Thanks to Mr. Iain Yardley, Consultant Neonatal and Paediatric Surgeon & Head of Paediatric Surgery
Get involved with the “lost twin” genetic study at the TOFS seminar
We are delighted to have Dr Charles Shaw-Smith and Dr Bryn Webb presenting their “OA/TOF and the lost twin” hypothesis at our “Improving Care in OA/TOF” seminar on Saturday. Attendees
Full schedule released for our Improving Care in OA/TOF seminar
We are pleased to be able to release the full schedule of talks for our upcoming “Improving Care in OA/TOF” seminar on the 18th November. Scroll down to meet our
Please join us in welcoming Sarah Winspear to the TOFS Team. Sarah joins us as our Membership, Communication and Events Officer from an NHSE Graduate Scheme . Her experience includes
How to get to the Improving Care in OA/TOF seminar
How to get there Our “Improving Care in OA/TOF” seminar is being held at the Institute of Child Health (ICH) on Saturday, 18th November. Read on for our helpful guide
Watch: The work of EAT in Ernica
Patient representatives of EAT introduce you to participation and advocacy from a patient perspective in ERNICA. This presentation was given at the recent EAT General Assembly by Graham Slater, Anke Widenmann
From Awardee to Board Member: An Interview with Graham Slater
Earlier this year, EURODIS interviewed TOFS Trustee, Graham Slater shortly after he was elected to their board of directors. EURORDIS (Rare Diseases Europe) is a unique, non-profit alliance of over
Watch: How our Adult OA/TOF Working Group is making a difference
We are pleased to announce the release of our final recording from our in-person seminar in York. Watch as Kate Tyler talks about how our Adult Working Group is
Watch our presentation: Reflux – ear, nose & throat and dental complications
At our recent seminar for adults born with OA/TOF, Dr Caroline Love gave a talk on ‘Reflux-related ear, nose & throat (ENT) and dental complications’. Caroline is the author
Please join us as we celebrate TOFS Class of 2023 as they start or return to school and nursery. Don’t forget, you can find helpful school resources on our
Will you leave a legacy gift to TOFS?
This week is Remember A Charity Week, in which we ask for you to consider leaving a legacy gift to TOFS in your Will. For TOFS, such gifts can make
Come and cheer on your Great North Run team!
Click here to sponsor our runners! We are very proud that we have 5 TOFS allocated and a number of own place runners training hard for the Great North Run
Vacancy: Membership support and communication officer
Would you like your work to have a direct impact on people’s lives? Do you want to use your organisational and communication skills to help others? Do you love the
New video now available: In conversation with Professor Alyn Morice.
At our recent in-person seminar for adults born with OA/TOF we were very fortunate to be joined by the “TOF Cough Prof” himself, Professor Alyn Morice. In his informal talk,
Meet your 2023 Great North Run team
We are proud to introduce TOFS 2023 Great North Run team. Please read their stories and give the a sponsor. Running for TOFS are: Janet Wills Laura Hammond Clare Perez
TOFS appoint first celebrity ambassador
Charlotte Fisher becomes celebrity ambassador for TOFS. We are proud to announce the appointment of BBC Interior Design Masters competitor, solicitor and actress, Charlotte Fisher, as our first celebrity ambassador
TOFS trustee elected to the EURORDIS board of directors
We were delighted to hear that our very own TOFS trustee and, not least, OA/TOF Adult Graham Slater has recently been elected to the EURORDIS Board of Directors! EURORDIS (Rare
Our next few events are shown below. Please click here to view all our upcoming events.
TOFS receives no Government support and relies completely on donations from our supporters.
Regular donations are extremely important to TOFS. By choosing to give a regular monthly donation, you will help us to plan ahead and make long-term improvements for people with OA/TOF and associated conditions all over the world.
