Our vision is for anyone born with OA/TOF to be able to live life unlimited.
We are working towards a world in which those born with OA/TOF live long and healthy lives, unconstrained by the impact of being born with these conditions.
Discover more about the small team of staff who manage the day to day operations at TOFS.
Meet the people who govern TOFS and ensure we deliver our charitable objectives.
Our patrons are highly respected medical professionals who specialise in the OA/TOF condition.
TOFS ambassadors play a vital role in helping to raise awareness of OA/TOF.
The MAG advises TOFS on medical matters and help to improve the information that is available to our members.
Learn more about our diverse range of sub-committees and specialist working groups who help to ensure the smooth and effective operation of the TOFS charity.
See our latest vacancies.
We are happy to speak to the media and journalists to help raise awareness of OA/TOF and related conditions.
TOFS is committed to transparency, governance and good practice.
Discover how TOFS work with other organisations to support our vision.
We are PIF TICK certified, the UK’s only independently-assessed quality mark for print and online health and care information.
Learn more about how TOFS raises vital funds to continue our work.
