As OA/TOF Awareness Week 2026 draws to a close, we want to express our deepest gratitude to our community. Whether you fundraised, told your story, or helped spread the word, you have made a real difference.
The week may be over, but the mission continues. Here is how you can keep the momentum going:
Listen and Amplify:
Revisit our BBC Radio interview and pass it on to your network:
https://tofs.org.uk/2026/02/tofs-featured-on-bbc-cw-radio/
Share our Ambassador’s message:
Hear the latest message from Tom Bright: https://tofs.org.uk/oa-tof-information/oa-tof-videos/born-unable-to-swallow-my-oa-tof-story-by-tom-bright/
Celebrate your Hero:
Create and post a personalised certificate for your OA/TOF hero: https://tofs.org.uk/hero/
Educate others:
Continue to remind your friends and family that while OA/TOF is more common than many realise, public understanding of its lifelong impact is still lacking.
Write to your MP or representative:
Help our fight for consistent lifelong multi-disciplinary care for people born with OA regardless of their age, or where they live in the UK.
You will find a letter with some suggested text to send on our OA/TOF Awareness Week page:
https://tofs.org.uk/oa-tof-awareness-week-2026/#involved
Download and share our image:
Thank you for being such a vital part of this incredible community. Let’s keep this conversation going to ensure no one has to navigate the world of OA/TOF alone.
Support our future work
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Our work providing lifelong support for those born with OA/TOF relies on the generosity of people like you. If you are in a position to help, please consider making a donation to ensure we can continue to be there for our community.
Donate here: https://fundraising.tofs.org.uk/donation/tofs?tag=aw26
