Save the date OA/TOF Awareness Week is taking place from the 23rd Feb - 1st of March.More information will follow soon...
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 Are you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about the father’s perspective of having a child born with OA/TOF?This event is open to all members but may be particularly useful for dads and male caregivers, wishing to meet others […] |
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 28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.https://www.youtube.com/watch?v=7J1oTfoIOGw How to get involved Light up for Rare At 7pm on the 28th Feb, show your colours and join the global chain of lights! Play this video at full screen […] |
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 The TOFS seminar is being held at the Institute of Child Health (ICH), London on Saturday, 21st March, 2026.Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term […] |
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