The TOFS Seminar was held on the 1st March in Bristol. A full write up of the event will be featured in the next issue of our Chew Magazine.
Videos of the day’s presentations will be shown here when released.
12.15
| Arrival & registration |
12:45
| Welcome |
12:50
| TOFS
|
13:00
| The Lost Twin Hypothesis |
13:25
| OA/TOF: from birth to 5 years & Surgical-PEARL project update |
13:55
| Refreshments & chat |
15:00
| Advancement in the instrumental assessment of swallowing in paediatrics |
15:30 | Personal experience of OA/TOF transition & Southwest NHS approach |
15:55
| Discussion session |
16:25
| Final remarks & close |
Dr Charles Shaw-Smith is a Consultant in Clinical Genetics at Royal Devon University Hospital. He was, from 2006 to 2010, a Wellcome Trust Intermediate Clinical Fellow, based at the Sanger Institute and Department of Clinical Genetics at Addenbrooke’s Hospital in Cambridge. This four-year award enabled him to focus attention on his main research interests of genetic factors in oesophageal atresia and the VACTERL association. Since 2010 Charles has been based at the Royal Devon University Hospital and Peninsula Medical School in Exeter, where he continues to have a clinical interest in oesophageal atresia and related malformations, and is currently working on the ‘Lost Twin’ study to try to improve understanding of the causes of OA/TOF.
Clare is a Paediatric Consultant Surgeon at Bristol Royal Hospital for Children. She has also contributed to a range of research projects including the Surgical-PEARL protocol, a multicentre study exploring aetiology management and outcomes for patients with congenital anomalies potentially requiring surgical intervention.
Emma qualified from the University of Bristol in 2017 and has worked as a doctor in both the UK and New Zealand. She specialises in Obstetrics and Gynecology and is currently undertaking a PhD in Fetal Medicine looking into improving diagnosis and care for babies with congenital anomalies that require surgery after birth. In her spare time she loves cooking and taking her husband on adventurous holidays!
Helen is the Lead Speech and Language Therapist at Bristol Children’s University Hospital. Helen has been working for almost 20 years with OA/TOF patients in Bristol and with the TOFS charity to try and raise the awareness of the role of speech and language therapists in their feeding and swallowing journeys.
She is particularly interested in supporting SALTs in the community, who may not see as many of these patients as they do in a regional hospital.
Helen’s specific clinical interest is with OA/TOF patients with associated upper airway problems such as vocal cord palsy and tracheomalacia. Along with her SALT, nursing and surgical colleagues on the NICU, they have successfully introduced Sham feeding for some of our long gap babies, using a replogle tube and we are very proud to be the first unit in the UK to do this with a breast-feeding baby.
Carole is the Transition Lead at Somerset NHS Foundation Trust and was a volunteer family support worker at Bristol Children’s hospital. Before this role she was a college lecturer and senior manager for 40 years including student support and received a postgraduate diploma in health promotion. Carole has also been a TOFS member for many years, being a parent to her 36-year-old daughter, Hannah, born with OA/TOF. She continues to advocate on behalf of her daughter and other OA/TOF adults to improve transition for patients and receive the right care they need.
