Don’t miss your chance to meet up with other OA/TOF parents and families in South Wales.Naomi Webborn, TOFS Local Contact (TLC) for South Wales has organised an informal get-together in Cardiff and you are invited.When : Sunday, 13th July, 2025Where: Ronald McDonald House Heath Park Way, Cardiff, CF14 4AYThis event is being organised by Naomi.If […]
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
Don’t miss your chance to meet up with other OA/TOF parents and families in Birmingham, for a cuppa and chat.Emma Connor, TOFS Local Contact (TLC) for Birmingham has organised an informal get-together and you are invited.What:Coffee MorningWhen:Saturday 30th August, 2025 10.30am – 12.30pmWhere:Day Room, Ronald McDonald House, St Mary’s Row, Birmingham, B4 6NYThis event is […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
We have now closed our application process for the 2025 Great North Run but please check out our other marathons and events. Related updates Run for TOFS in the 2025 Great North Run and help to make a difference in the lives of those born unable to swallow. 60,000 determined and dedicated runners make the Great […]
Are you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about the father’s perspective of having a child born with OA/TOF?This event is open to all members but may be particularly useful for dads and caregivers, wishing to meet other parents […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Are you an adult born with OA/TOF and experiencing respiratory issues, such as chronic cough, aspiration, dysmotility or tracheomalacia? Join us for the upcoming Q&A session with Professor Alyn Morice. Professor Morice is Head of Respiratory Medicine at HYMS, based at the University of Hull. He is also an Honorary Consultant Physician at Hull and East […]
Run for TOFS in the 2025 Royal Park Half Marathon and help to make a difference in the lives of those born unable to swallow. Apply soon. Places going fast! SOLD OUT: Please note: This event is now full but you can still sign-up to the waitlist. Entry fee: £50 + £2.50 booking fee.This fee goes towards […]
TOFS Member, Danielle Clabby has organised the 3rd annual Myles Clabby Memorial Cup in October to celebrate the memory of baby Myles.Danielle says, "We want to see as many people there as possible so please spread the word. There will be raffles on the day as well as other fundraising opportunities for TOFS charity."Entry fees:Adults: […]
Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa, and the opportunity to share experiences, discuss common issues around OA/TOF and get support in a relaxed, safe space with people who understand.This is an informal get […]
Take part in our Big Splash Swimathon and help support TOFS while staying active! Choose to go it alone or get the whole family involved and set a group target. Pick your distance from our Mini splash right up to 10K or go freestyle and pick your own. Get down to your local pool, lido […]
The European Respiratory Society (ERS) is holding a webinar which may be of interest to medical professionals with an interest in OA/TOF.The event is co-chaired by Dr Caroline Love, Chair of our Medical Liaison & Research sub-committee, author of the Adult OA/TOF Management Handbook and an adult born with OA/TOF.Event details:29 October, 2025 | Online5pm-6pm CET (4pm […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa, and the opportunity to share experiences, discuss common issues around OA/TOF and get support in a relaxed, safe space with people who understand. This is an informal […]
Run for TOFS at the UK’s biggest Theme Park, Alton Towers, on the 15th &16th November for the Alton Towers 5k, 10k & half marathon events around the park. Starting and finishing within Alton Towers Theme Park this is an event for the entire family. Open to all abilities, you can take on a chip […]
Don’t miss your chance to meet up with other OA/TOF parents and families in the West Midlands, for a cuppa, chat and some Christmas crafts. Emma Connor, TOFS Local Contact (TLC) for the West Midlands has organised an informal get-together and you are invited!What:Christmas crafts and coffee morningWhen:Saturday 22nd November 2025 10am – 12.30pmWhere:Day Room, […]
Don’t miss your chance to meet up with other OA/TOF parents and families from across Merseyside and the Wirral.Alan & Carolyn, TOFS Local Contacts (TLC) for Liverpool, are organising an informal get-together in Moreton and you are invited.When:Saturday, 22nd November, 2025Where:Moreton Presbyterian Church174a Hoylake Rd, Moreton, Wirral, CH46 8TQ This event is free and being […]
IMPORTANT UPDATE:This event was originally scheduled to take place on the 4th December.Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa, and the opportunity to share experiences, discuss common issues around OA/TOF and get support in a relaxed, safe space with people who understand. This is an informal […]
Start New Year on the right foot!A great event to wrap up and walk off the Christmas & New Year celebrations; maybe kick start a new fitness regime - and to fundraise for your favourite charity!There are Full Marathon, Half Marathon & 10km distance options – and an accessible ‘Family Fun 5K’ on the Sunday.All […]
Don’t miss your chance to meet up with other OA/TOF parents and families from across Bristol and surrounding areas.Sarah, TOFS Local Contact (TLC) for the South West of England, is organising an informal get-together in Bristol and you are invited.When:Saturday, 31st January, 2026Where:Ronald McDonald House, Bristol Royal Fort Road, Bristol, BS2 8DH This event is […]
Don’t miss your chance to meet up with other OA/TOF parents and families from across Essex and the South East. Anna, TOFS Local Contact (TLC) for Essex, is organising an informal get-together in Chelmsford and you are invited. When:10am - 12noonSaturday, 31st January, 2026 Where:Mace Playce Soft PlayCuton Hall Ln, Chelmsford CM2 6PBQ This event […]
