VACTERL Association Support Group Get-Together 2025
This event is promoted on behalf of the VACTERL Association Support Group.The VACTERL Association Support Group aims to connect families and those affected by VACTERL
This event is promoted on behalf of the VACTERL Association Support Group.The VACTERL Association Support Group aims to connect families and those affected by VACTERL
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who
Don’t miss your chance to meet up with other OA/TOF parents and families in South Wales.Naomi Webborn, TOFS Local Contact (TLC) for South Wales has
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led
Don’t miss your chance to meet up with other OA/TOF parents and families in Birmingham, for a cuppa and chat.Emma Connor, TOFS Local Contact (TLC)
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who
We have now closed our application process for the 2025 Great North Run but please check out our other marathons and events. Related updates Run
Are you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who
Are you an adult born with OA/TOF and experiencing respiratory issues, such as chronic cough, aspiration, dysmotility or tracheomalacia? Join us for the upcoming Q&A
Run for TOFS in the 2025 Royal Park Half Marathon and help to make a difference in the lives of those born unable to swallow. Apply
TOFS Member, Danielle Clabby has organised the 3rd annual Myles Clabby Memorial Cup in October to celebrate the memory of baby Myles.Danielle says, "We want
Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for
Take part in our Big Splash Swimathon and help support TOFS while staying active! Choose to go it alone or get the whole family involved
The European Respiratory Society (ERS) is holding a webinar which may be of interest to medical professionals with an interest in OA/TOF.The event is co-chaired
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who
Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for
Run for TOFS at the UK’s biggest Theme Park, Alton Towers, on the 15th &16th November for the Alton Towers 5k, 10k & half marathon
Don’t miss your chance to meet up with other OA/TOF parents and families in the West Midlands, for a cuppa, chat and some Christmas crafts.
Don’t miss your chance to meet up with other OA/TOF parents and families from across Merseyside and the Wirral.Alan & Carolyn, TOFS Local Contacts (TLC)
IMPORTANT UPDATE:This event was originally scheduled to take place on the 4th December.Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who
Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for
Start New Year on the right foot! A great event to wrap up and walk off the Christmas & New Year celebrations; maybe kick start
Don’t miss your chance to meet up with other OA/TOF parents and families from across Bristol and surrounding areas.Sarah, TOFS Local Contact (TLC) for the
Don’t miss your chance to meet up with other OA/TOF parents and families from across Essex and the South East. Anna, TOFS Local Contact (TLC)
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led
Are you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about
28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
