Run the London Marathon for TOFS! Latest news & updates TOFS London Marathon team We have now closed our application process for the 2025 London Marathon due to unprecedented interest, but please check out our other marathons and events. Entry fee: £50 This fee goes towards the admin fees charged by the race organisers but […]
The joint meeting of INoEA, PAAFIS and Aerodigestive Society will be held in Istanbul Turkey from April 30th to May 3rd, 2025.The meeting will be hosted by Turkish Association of Pediatric Surgeons (TAPS).Professionals working in the field of oesophageal atresia from around the world have been gathering at the INoEA conferences for more than a […]
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
The Teddy Toddle is back and you can double your donation for free!Toddle for the mental health of TOFS!The exciting fundraising event that challenges you to walk, run or even skip 5K for TOFS.The big change this year is that we will be holding the event as part of our Big Give campaign. This means […]
Take on the Peak District Ultra Challenge for TOFS!Join Team TOFS to walk, jog, or run in the heart of the beautiful Peak District National Park.Whether you’re up for the 100km, the 50km, the 25km or prefer the shorter 10mile option, there’s something for everyone, and every route includes breath-taking views, including a pass by the […]
This event is promoted on behalf of the VACTERL Association Support Group.The VACTERL Association Support Group aims to connect families and those affected by VACTERL Association, from across the UK. It's a chance to learn new things and share experiences with people, that are beginning or continuing their journey with VACTERL.The VACTERL Association Support Group […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Don’t miss your chance to meet up with other OA/TOF parents and families in South Wales.Naomi Webborn, TOFS Local Contact (TLC) for South Wales has organised an informal get-together in Cardiff and you are invited.When : Sunday, 13th July, 2025Where: Ronald McDonald House Heath Park Way, Cardiff, CF14 4AYThis event is being organised by Naomi.If […]
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
Don’t miss your chance to meet up with other OA/TOF parents and families in Birmingham, for a cuppa and chat.Emma Connor, TOFS Local Contact (TLC) for Birmingham has organised an informal get-together and you are invited.What:Coffee MorningWhen:Saturday 30th August, 2025 10.30am – 12.30pmWhere:Day Room, Ronald McDonald House, St Mary’s Row, Birmingham, B4 6NYThis event is […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
We have now closed our application process for the 2025 Great North Run but please check out our other marathons and events. Related updates Run for TOFS in the 2025 Great North Run and help to make a difference in the lives of those born unable to swallow. 60,000 determined and dedicated runners make the Great […]
Are you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about the father’s perspective of having a child born with OA/TOF?This event is open to all members but may be particularly useful for dads and caregivers, wishing to meet other parents […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Are you an adult born with OA/TOF and experiencing respiratory issues, such as chronic cough, aspiration, dysmotility or tracheomalacia? Join us for the upcoming Q&A session with Professor Alyn Morice. Professor Morice is Head of Respiratory Medicine at HYMS, based at the University of Hull. He is also an Honorary Consultant Physician at Hull and East […]
Run for TOFS in the 2025 Royal Park Half Marathon and help to make a difference in the lives of those born unable to swallow. Apply soon. Places going fast! SOLD OUT: Please note: This event is now full but you can still sign-up to the waitlist. Entry fee: £50 + £2.50 booking fee.This fee goes towards […]
TOFS Member, Danielle Clabby has organised the 3rd annual Myles Clabby Memorial Cup in October to celebrate the memory of baby Myles.Danielle says, "We want to see as many people there as possible so please spread the word. There will be raffles on the day as well as other fundraising opportunities for TOFS charity."Entry fees:Adults: […]
Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa, and the opportunity to share experiences, discuss common issues around OA/TOF and get support in a relaxed, safe space with people who understand.This is an informal get […]
Take part in our Big Splash Swimathon and help support TOFS while staying active! Choose to go it alone or get the whole family involved and set a group target. Pick your distance from our Mini splash right up to 10K or go freestyle and pick your own. Get down to your local pool, lido […]
The European Respiratory Society (ERS) is holding a webinar which may be of interest to medical professionals with an interest in OA/TOF.The event is co-chaired by Dr Caroline Love, Chair of our Medical Liaison & Research sub-committee, author of the Adult OA/TOF Management Handbook and an adult born with OA/TOF.Event details:29 October, 2025 | Online5pm-6pm CET (4pm […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa, and the opportunity to share experiences, discuss common issues around OA/TOF and get support in a relaxed, safe space with people who understand. This is an informal […]
Run for TOFS at the UK’s biggest Theme Park, Alton Towers, on the 15th &16th November for the Alton Towers 5k, 10k & half marathon events around the park. Starting and finishing within Alton Towers Theme Park this is an event for the entire family. Open to all abilities, you can take on a chip […]
Don’t miss your chance to meet up with other OA/TOF parents and families in the West Midlands, for a cuppa, chat and some Christmas crafts. Emma Connor, TOFS Local Contact (TLC) for the West Midlands has organised an informal get-together and you are invited!What:Christmas crafts and coffee morningWhen:Saturday 22nd November 2025 10am – 12.30pmWhere:Day Room, […]
Don’t miss your chance to meet up with other OA/TOF parents and families from across Merseyside and the Wirral.Alan & Carolyn, TOFS Local Contacts (TLC) for Liverpool, are organising an informal get-together in Moreton and you are invited.When:Saturday, 22nd November, 2025Where:Moreton Presbyterian Church174a Hoylake Rd, Moreton, Wirral, CH46 8TQ This event is free and being […]
IMPORTANT UPDATE:This event was originally scheduled to take place on the 4th December.Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa, and the opportunity to share experiences, discuss common issues around OA/TOF and get support in a relaxed, safe space with people who understand. This is an informal […]
Start New Year on the right foot!A great event to wrap up and walk off the Christmas & New Year celebrations; maybe kick start a new fitness regime - and to fundraise for your favourite charity!There are Full Marathon, Half Marathon & 10km distance options – and an accessible ‘Family Fun 5K’ on the Sunday.All […]
Don’t miss your chance to meet up with other OA/TOF parents and families from across Bristol and surrounding areas.Sarah, TOFS Local Contact (TLC) for the South West of England, is organising an informal get-together in Bristol and you are invited.When:Saturday, 31st January, 2026Where:Ronald McDonald House, Bristol Royal Fort Road, Bristol, BS2 8DH This event is […]
Don’t miss your chance to meet up with other OA/TOF parents and families from across Essex and the South East. Anna, TOFS Local Contact (TLC) for Essex, is organising an informal get-together in Chelmsford and you are invited. When:10am - 12noonSaturday, 31st January, 2026 Where:Mace Playce Soft PlayCuton Hall Ln, Chelmsford CM2 6PBQ This event […]
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
Save the date From the 23rd February until the 1st March we are asking all members to help us raise awareness of Oesophageal Atresia and Tracheo-Oesophageal Fistula (OA/TOF) .To find out how to get involved, please visit our dedicated Awareness Week page at: https://tofs.org.uk/oa-tof-awareness-week-2026/
Are you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about the father’s perspective of having a child born with OA/TOF?This event is open to all members but may be particularly useful for dads and male caregivers, wishing to meet others […]
28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. How to get involved Light up for Rare At 7pm on the 28th Feb, show your colours and join the global chain of lights! Play this video at full screen […]
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there.The TOFS seminar is […]
Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa, and the opportunity to share experiences, discuss common issues around OA/TOF and get support in a relaxed, safe space with people who understand.This is an informal get […]
Don’t miss your chance to meet up with other OA/TOF parents and families in the West Midlands, for a cuppa, chat and some Easter crafts! Emma, TOFS Local Contact (TLC) for the West Midlands has organised an informal get-together and you are invited! What:Children’s Easter crafts When:Saturday 28th March, 202610am – 1pm Where:Day Room, Ronald […]
SOLD OUT: Please note: This event is now full but you can still sign-up to to waitlist. The London Landmarks Half Marathon is a closed road, central London run and is the only half marathon to go through both the City of London and City of Westminster. The event is not your average half marathon! […]
This event has now sold out. Please see our other challenge events if you would like to fundraise for TOFS. Run for TOFS and experience the buzz of the UK’s third-largest marathon! The Brighton Marathon is a unique event which brings out the best of Brighton and celebrates its vibrant communities. What to expect: A […]
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
This event has now sold out. Please see our other challenge events if you would like to fundraise for TOFS. The adidas Manchester Marathon, the UK's second largest marathon and one of Europe's largest is an iconic event drawing participants from all over the world to the vibrant streets of Greater Manchester. The event prides […]
Don’t miss your chance to meet up with other OA/TOF parents and families from across Manchester and surrounding areas.To'neill, TOFS Local Contact (TLC) for Manchester, is organising an informal get-together for children born with OA/TOF and their families.When:25th April 2026, 11:00am-12.30pmWhere: Ladybridge Connect Centre Café, Off Meadway Rd, Cheadle Hulme, Stockport SK8 5NZ (map)This event […]
