Created by Dr Caroline Love, Chair of TOFS Medical Liaison & Research sub-committee with support from volunteer members: Amreeta Aytain, Joanna Woodley, Joanne Winspear and Tamasine Swan.
The OA/TOF Passport can be used by everyone impacted by OA/TOF.
It could be especially useful if your teen is approaching transition to adult care and will need a summary of his/her care whilst in paediatric services.
It has been designed so it may be completed by adults born with OA/TOF and the parents/carers of children born with the condition.
We hope it will support people of all ages within health and social care settings or in education. It will help you keep an ongoing record of the impact that being born with OA/TOF born has had on you or your child’s life and to assist in communicating this to medical professionals or others who may be unfamiliar with your condition.
You can complete the Passport on your own, with support or someone else could complete it for you.
We’ve tried to keep the Passport as a comprehensive but easy to complete document that can be printed out or presented digitally.
A simpler solution is available in our Pocket-sized health record from the TOFS shop but we encourage you to use this more comprehensive record.
What are the benefits in having an OA/TOF Passport?
The OA/TOF Passport can:
We hope you will find it useful.
Your OA/TOF Passport may be completed by typing in online or printing out and completing by hand. You do not have to complete every section if you do not want to. Just add the information you want people to know about you or your child. You can download each section individually if you prefer.
The OA/TOF Passport is unique to you. Please use it however you feel is best.
Important:
If you choose to complete the form online, please remember to save a copy of the completed form to your device (or print it out). No data will be retained by TOFS and any unsaved changes will be lost.
If you prefer to complete the document by hand, simply download and print off a copy.
The OA/TOF Passport is available in both Word and PDF formats.
This is the full version of the OA/TOF Passport. This contains all the sections that we feel may be appropriate for most users. Feel free to add or remove sections to your passport as required (as listed below).
You may also download individual sections below to create your own bespoke passport.
This is your document to complete as you see fit.
Use the sections below to create your very own OA/TOF Passport with just the parts you need.
