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Share your story

We would love to hear about your experiences of OA/TOF and how it has affected your life.

Who we would love to her from.

  • Adults born with OA/TOF
  • Parents and carers of children with  OA/TOF
  • Wider family members of people with the condition.
  • Medical professionals with experience of treating OA/TOF

As well as sharing stories directly on our website, we also regularly feature stories in our dedicated  membership magazine, Chew.

If you would like share your story, please contact the TOFS office for more information.

Read More OA/TOF Stories