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TOFS Awareness Week 2024

Help design the parent-reporting component of the CSOR database

Calling parents & carers of children born with OA/TOF, The University of Oxford is looking for participants to help design the parent-reporting component of the database by participating in a focus group and an optional short follow-up survey.

They are looking for parents, guardians, or carers of children who have been diagnosed before the age of 16 with one of the following conditions (regardless of whether the child has had an operation):

  • Oesophageal atresia
  • Necrotising enterocolitis (NEC)
  • Hirschsprung’s disease
    Abdominal wall defects (gastroschisis, exomphalos)
  • Congenital diaphragmatic hernia (CDH)
  • Posterior urethral valves (PUV)

You must be over 18 years old to participate. Participants will be offered £20 shopping vouchers.

For more information, please visit, or email

This survey is part of the CSOR study, which is endorsed by TOFS.

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