The impact of OA/TOF on those born with the condition, their families and carers can be significant. On World Mental Health, day we would like to highlight some of the resources are available on our site that you may find helpful.
- Support for mental health (download with useful links)
- About mental health in OA/TOF (from our Adult OA/TOF Management Handbook)
- Dr Vuokko Wallace shares her findings of her research into”Parental mental health in the context of OA/TOF and recommendations for digitalised psychological support” (video only available to TOFS members)
- External research: “Traumatic stress, mental health and quality of life in adolescents with esophageal atresia“
- External research: “Mental health care for rare disease in the UK“
Get support
If you would like to talk to someone with experience of OA/TOF then please get in touch with one of TOFS Local Contacts (TLCs).
TLCs are volunteers who have children born with OA/TOF and all are happy to hear from you and give guidance, support or just a listening ear.
Find their details from the members-only area of the website.
We also facilitate two private self help groups on Facebook.
TOFS Support on Facebook – a private group for parents and carers of those born with OA/TOF
Adults born with Tracheo-Oesophageal Fistula / Oesophageal Atresia – a private group for adults born with OA/TOF.
