We are excited to announce the launch of our brand new resource, the OA/TOF Passport.
Created by Dr Caroline Love, Chair of TOFS Medical Liaison & Research sub-committee with support from volunteer members, the passport can be used by adults born with OA/TOF and the parents/carers of children born with the condition to record what’s important to you.
It will help you keep an ongoing record of the impact that being born with OA/TOF born has had on you or your child’s life and to assist in communicating this to medical professionals or others who may be unfamiliar with your condition.
The Passport could be especially useful if you have a teen who is approaching transition to adult care and will need a summary of their care whilst in paediatric services
Why use the OA/TOF Passport?
Using The OA/TOF Passport can:
• Help support you or your child in managing healthcare needs
• Share vital information about your condition
• Help to communicate specific health and personal needs to medical professionals.
We hope you will find it useful.
Click here to find our more and to start completing your OA/TOF Passport.
