Are you the parent of a child born with OA/TOF? If yes, then your experiences are incredibly valuable and we would love to hear from you.
By sharing your journey, you can help shape the future of TOFS. Your insights can directly inform how we support families and advocate for other parents now and in the future.
What is the survey about?
We’re looking to better understand your experiences with:
- The initial OA/TOF diagnosis
- Coming home from the NICU
- Challenges around feeding and weaning
The survey is largely multiple choice and should take around 8-10 minutes to complete. Answers are anonymous and confidential.
For more information, please contact info@tofs.org.uk. If you have any questions about the issues raised in this survey, please contact your medical team.
All data will be held and used in accordance with TOFS’ Privacy statement.



