Respiratory issues and tracheomalacia can be one of the most challenging parts of living with OA/TOF.
In this presentation from the TOFS Seminar 2026, Dr Caroline Love shares her personal update on the latest thinking around breathing problems, tracheomalacia, chronic cough, airway clearance, surgery, and long-term follow-up.
Caroline is Chair of the TOFS Medical Liaison & Research sub-committee, author of the Adult OA/TOF Management Handbook and an adult born with OA/TOF.
The video is well worth watching for anyone affected by OA/TOF, whether you are a parent, an adult with OA/TOF, a carer, or a healthcare professional.
If you have experienced ongoing cough, chest infections, breathlessness or concerns about tracheomalacia, this presentation may help you feel more informed and better prepared for conversations with your medical team.
Watch to learn more and share it with anyone who may benefit from a greater understanding the respiratory side of OA/TOF.



