ERNICA – the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies have an upcoming webinar which may be useful for TOFS members.
Title:
A traumatic Diagnosis – the (early) parent-child interaction in (rare) chronic paediatric diseases
When:
Wednesday 5 March at 3pm (UK) / 4pm (CET)
Book:
https://events.teams.microsoft.com/event/08ac7def-4022-4d2e-a5c7-7e08feadf9e4@526638ba-6af3-4b0f-a532-a1a511f4ac80
About the webinar:
Receiving a diagnosis for a serious condition in a child is a life-changing moment for parents. This webinar will delve into both the clinical and research perspectives on this challenging experience, providing insights into how healthcare professionals can better support families through the diagnostic process.
We will explore the emotional and psychological impact on parents, common barriers to understanding, and strategies to help families navigate this journey. Join us for an in-depth discussion aimed at enhancing the care and communication surrounding paediatric diagnoses. The moderator of this webinar will be Dr. Vuokko Wallace (University of Bath).
