VACTERL Association Support Group Get-Together 2025
This event is promoted on behalf of the VACTERL Association Support Group.The VACTERL Association Support Group aims to connect families and those affected by VACTERL
This event is promoted on behalf of the VACTERL Association Support Group.The VACTERL Association Support Group aims to connect families and those affected by VACTERL
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who
Don’t miss your chance to meet up with other OA/TOF parents and families in Birmingham, for a cuppa and chat.Emma Connor, TOFS Local Contact (TLC)
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who
Are you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who
Are you an adult born with OA/TOF and experiencing respiratory issues, such as chronic cough, aspiration, dysmotility or tracheomalacia? Join us for the upcoming Q&A
Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who
Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for
Don’t miss your chance to meet up with other OA/TOF parents and families in the West Midlands, for a cuppa, chat and some Christmas crafts.
Don’t miss your chance to meet up with other OA/TOF parents and families from across Merseyside and the Wirral.Alan & Carolyn, TOFS Local Contacts (TLC)
IMPORTANT UPDATE:This event was originally scheduled to take place on the 4th December.Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who
Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for
Don’t miss your chance to meet up with other OA/TOF parents and families from across Bristol and surrounding areas.Sarah, TOFS Local Contact (TLC) for the
Don’t miss your chance to meet up with other OA/TOF parents and families from across Essex and the South East. Anna, TOFS Local Contact (TLC)
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led
Are you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about
28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led
TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re
Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for
Don’t miss your chance to meet up with other OA/TOF parents and families in the West Midlands, for a cuppa, chat and some Easter crafts!
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led
Don’t miss your chance to meet up with other OA/TOF parents and families from across Manchester and surrounding areas.To'neill, TOFS Local Contact (TLC) for Manchester,
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led
Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for
Note: Later UK time to accommodate international members. UK: Saturday, 13th June - 10.30 PM (2230) International:Auckland - Sunday, 14th June - 9.30 AMSydney -
Are you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about
Don’t miss your chance to meet up with other OA/TOF parents and families in Southport and from across the North West Region. Alan & Carolyn,
Don’t miss your chance to meet up with other OA/TOF parents and families from across Bristol and surrounding areas. Sarah, TOFS Local Contact (TLC) for
Don’t miss your chance to meet up with other OA/TOF parents and families from across Exeter and surrounding areas. Sarah, TOFS Local Contact (TLC) for
Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led
Note: Later UK start time to accommodate international members.UK: Saturday, 12th September - 10.30 PM (2230)Example international times:Auckland: Sunday 13th September - 9.30am Sydney: Sunday 13th
Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who
