Starting Nursery, Pre-school, and School – Talk with TLCs
OnlineDo you have a child born with OA/TOF starting nursery, preschool or school soon? Join our Talk with TLCs session to speak to other parents and share experiences. The session will […]
Do you have a child born with OA/TOF starting nursery, preschool or school soon? Join our Talk with TLCs session to speak to other parents and share experiences. The session will […]
Join us for our 2025 Awareness Week and help us raise awareness of OA/TOF with health professionals and the wider public. More details to follow soon.
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Keep reading to see how you can get involved. /*! […]
Quick links:Book your ticketFull scheduleSpeaker biographiesJoin us in Bristol to hear from some leading experts and specialists from a variety of healthcare professions, who work with OA/TOF patients. It is […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
Do you have any questions or concerns around the medications you or your child may take?Join Consultant Pharmacist Gastroenterologist Anja St Clair Jones, and Lead Neonatal Pharmacist Christian Chadwick, for […]
Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S.The T.O.F.S. Annual General Meeting will take place on the 24th April, 2025 by Zoom at […]
Run the London Marathon for TOFS! Latest news & updates TOFS London Marathon team We have now closed our application process for the 2025 London Marathon due to unprecedented interest, […]
The joint meeting of INoEA, PAAFIS and Aerodigestive Society will be held in Istanbul Turkey from April 30th to May 3rd, 2025.The meeting will be hosted by Turkish Association of […]
We have now closed our application process for the 2025 Great North Run but please check out our other marathons and events. Run for TOFS in the 2025 Great North Run […]
Run for TOFS in the 2025 Royal Park Half Marathon and help to make a difference in the lives of those born unable to swallow. Apply soon. Places going fast! Entry […]