Are you planning on taking your child born with OA/TOF away on holiday? Whether going away in the UK or abroad, as parents, our TLCs Naomi and To’neill understand the worry of what to pack, managing medications/equipment, and what food will be available… So, join them in sharing their top tips when travelling! CLICK HERE […]
Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S.The T.O.F.S. Annual General Meeting will take place on the 24th April, 2025 by Zoom at 7:00 pm. Invited to attend: Council of Management, TOFS office staff, all Members and Associates Click here to register AGENDA1. Welcome and confirmation of quorum 2. Introduction3. […]
Run the London Marathon for TOFS! Latest news & updates TOFS London Marathon team We have now closed our application process for the 2025 London Marathon due to unprecedented interest, but please check out our other marathons and events. Entry fee: £50 This fee goes towards the admin fees charged by the race organisers but […]
The joint meeting of INoEA, PAAFIS and Aerodigestive Society will be held in Istanbul Turkey from April 30th to May 3rd, 2025.The meeting will be hosted by Turkish Association of Pediatric Surgeons (TAPS).Professionals working in the field of oesophageal atresia from around the world have been gathering at the INoEA conferences for more than a […]
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
The Teddy Toddle is back and you can double your donation for free!Toddle for the mental health of TOFS!The exciting fundraising event that challenges you to walk, run or even skip 5K for TOFS.The big change this year is that we will be holding the event as part of our Big Give campaign. This means […]
Take on the Peak District Ultra Challenge for TOFS!Join Team TOFS to walk, jog, or run in the heart of the beautiful Peak District National Park.Whether you’re up for the 100km, the 50km, the 25km or prefer the shorter 10mile option, there’s something for everyone, and every route includes breath-taking views, including a pass by the […]
This event is promoted on behalf of the VACTERL Association Support Group.The VACTERL Association Support Group aims to connect families and those affected by VACTERL Association, from across the UK. It's a chance to learn new things and share experiences with people, that are beginning or continuing their journey with VACTERL.The VACTERL Association Support Group […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Don’t miss your chance to meet up with other OA/TOF parents and families in South Wales.Naomi Webborn, TOFS Local Contact (TLC) for South Wales has organised an informal get-together in Cardiff and you are invited.When : Sunday, 13th July, 2025Where: Ronald McDonald House Heath Park Way, Cardiff, CF14 4AYThis event is being organised by Naomi.If […]
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
Don’t miss your chance to meet up with other OA/TOF parents and families in Birmingham, for a cuppa and chat.Emma Connor, TOFS Local Contact (TLC) for Birmingham has organised an informal get-together and you are invited.What:Coffee MorningWhen:Saturday 30th August, 2025 10.30am – 12.30pmWhere:Day Room, Ronald McDonald House, St Mary’s Row, Birmingham, B4 6NYThis event is […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
We have now closed our application process for the 2025 Great North Run but please check out our other marathons and events. Related updates Run for TOFS in the 2025 Great North Run and help to make a difference in the lives of those born unable to swallow. 60,000 determined and dedicated runners make the Great […]
Are you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about the father’s perspective of having a child born with OA/TOF?This event is open to all members but may be particularly useful for dads and caregivers, wishing to meet other parents […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Are you an adult born with OA/TOF and experiencing respiratory issues, such as chronic cough, aspiration, dysmotility or tracheomalacia? Join us for the upcoming Q&A session with Professor Alyn Morice. Professor Morice is Head of Respiratory Medicine at HYMS, based at the University of Hull. He is also an Honorary Consultant Physician at Hull and East […]
Run for TOFS in the 2025 Royal Park Half Marathon and help to make a difference in the lives of those born unable to swallow. Apply soon. Places going fast! SOLD OUT: Please note: This event is now full but you can still sign-up to the waitlist. Entry fee: £50 + £2.50 booking fee.This fee goes towards […]
TOFS Member, Danielle Clabby has organised the 3rd annual Myles Clabby Memorial Cup in October to celebrate the memory of baby Myles.Danielle says, "We want to see as many people there as possible so please spread the word. There will be raffles on the day as well as other fundraising opportunities for TOFS charity."Entry fees:Adults: […]
