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From crisis to self-confidence and adaptation; Experiences of being a parent of a child with VACTERL association.

This researches the experience of parents receiving the diagnosis of VACTERL and how this changes over time.

Kassa AM, Engstrand Lilja H, Engvall G. From crisis to self-confidence and adaptation; Experiences of being a parent of a child with VACTERL association – A complex congenital malformation. PLoS ONE. 2019;14(4)