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CARE study

CARE genetic study update

Join Columbia University Irving Medical Center this Sunday (5pm UK) for a progress update on the CARE EA/TEF Study which many members of TOFS participated in. The study which examines

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CONCORD study publishes findings

Many TOFS members may remember taking part in the CONCORD study to explore preferences for different models of care coordination for people with rare diseases. The 30-month study from the

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