Presenting at our recent “Improving Care in OA/TOF” seminar in London, Dr Vuokko Wallace shared the findings of her research into “Parental mental health in the context of OA/TOF and
The next stage of the SaFE: Swallowing, Feeding and Eating in OA/TOF study is now open and we would like to invite you to take part. SaFE is a PhD
The SaFE: Swallowing, Feeding and Eating in OA/TOF study is fully supported by “TOFS” and is one of many research projects that we endorse. SaFE is a PhD project being carried
Research on the COVID-19 pandemic experiences of parents caring for children with oesophageal atresia/tracheo-oesophageal fistula has been published by Alex Stewart, Christina Smith, Simon Eaton, Paolo De Coppi & Jo Wray.
Join Columbia University Irving Medical Center this Sunday (5pm UK) for a progress update on the CARE EA/TEF Study which many members of TOFS participated in. The study which examines
Many TOFS members may remember taking part in the CONCORD study to explore preferences for different models of care coordination for people with rare diseases. The 30-month study from the
Since Summer 2021, the feasibility study stage of a major UK research programme – called TOAST (Treating Oesophageal Atresia to Prevent Stricture) – has been going on. This trial is
TOFS involved in another big research project! In 2021, the feasibility study stage of a major UK research programme – called TOAST (Treating Oesophageal Atresia to Prevent Stricture) – will
Researchers from the CARE for Kids EA/TEF* Study being conducted by Columbia University have had their genetic sequencing results (from 45 families who enrolled in the pilot study) published in
We’re pleased to announce that Clinical Psychologist, University of Bath (and Adult TOF), Dr Vuokko Wallace’s Manuscript titled: ‘Anxiety and depression in parents of children born with esophageal atresia: an
